Name  Acoustic Neuroma 
Related to/Also known as  Vestibular Schwannoma
Symptoms A slow growing benign brain tumour (non-cancerous). First symptoms are usually hearing loss or tinnitus and more rarely balance problems.
Useful National contacts British Acoustic Neuroma Association

Tel. 0800 652 3143
Link opens in new window www.bana-uk.com
Find your local support group:
Link opens in new window www.bana-uk.com/resources/our-branches

Online resources Acoustic neuroma (vestibular schwannoma) (NHS Choices website)
Link opens in new window www.nhs.uk/conditions/acoustic-neuroma/pages/introduction.aspx
Our resources

The library at the Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Visit our library to read our copy of the booklet "Effects An Acoustic Neuroma May Have On Your Memory, Emotions, Behaviour, Executive Functioning and Energy Conservation", published by the British Acoustic Neuroma Association.

Name  Alice in Wonderland Syndrome
Related to/Also known as 

Migraine aura

Symptoms

"[Migraine aura may] be accompanied by apparent flashing lights, by geometric shapes, or by unusual forms. Some migraineurs may experience unusual perceptions or hallucinations and a very rare form of aura known as "Alice in Wonderland" syndrome. This syndrome is identified by the perceptions of the sufferer; their body or other peoples’ bodies look distorted, so that things appear larger or smaller than usual, or further or closer away (“macropsia / micropsia”)."

Source: Link opens in new window Migraine Action

"[Things may appear] life-size or reduced or enlarged in size, and may be the same every time so they become familiar. The hallucinations may appear out of the blue and carry on for a few minutes or sometimes several hours. They can seem real – such as cows in a field – or unreal, such as pictures of dragons."

Source: Link opens in new window NHS Choices

Useful National contacts Migraine Action
Tel. 0116 275 8317
Link opens in new window www.migraine.org.uk
Find your local support group:
Link opens in new window www.migraine.org.uk/professionals/migraine-support-groups
Rare Disease UK (RDUK) is the national alliance for people in the UK with rare diseases
Link opens in new window www.raredisease.org.uk
Online resources

What is migraine aura? (Migraine Action PDF, NHS website)
Link opens in new window www.nhs.uk/ipgmedia/national/migraine%20action/assets/whatismigraineaura.pdf

The Alice in Wonderland syndrome (PubMed)
Link opens in new window www.ncbi.nlm.nih.gov/pubmed/10767914

Our resources

The library at the Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Visit our library to read our copy of the Brain and Spine Foundation's booklet on Migraine, which includes information on Migraine Aura.

Name Alzheimer's
Related to/Also known as Dementia
Symptoms

Dementia is a term used to describe various different brain disorders, that have in common a loss of brain function that is usually progressive and eventually severe.

The most common type of dementia is Alzheimer's Disease.

Symptoms of dementia include loss of memory, confusion and problems with speech.

Types There are over 100 different types of dementia, including Alzheimer's Disease. For more information see the Alzheimer's Society website Link opens in new window
Useful national contacts Alzheimer's Society (England, Wales and Northern Ireland)
Link opens in new window www.alzheimers.org.uk
Helpline: 0300 222 1122
Find your local support service:
Link opens in new window www.alzheimers.org.uk/local-information/dementia-connect/#!/search

Alzheimer's Scotland
Link opens in new window www.alzscot.org
Helpline: 0808 808 3000
Find your local support service:
Link opens in new window www.alzscot.org/services_and_support/search


Dementia Research (NHS National Institute for Health Research)
Join dementia research - register your interest in dementia research
Link opens in new window www.joindementiaresearch.nihr.ac.uk

Online resources

Alzheimer's Society factsheets in audio format
Link opens in new window http://bit.ly/1fgojzY
News and events

Dementia Awareness Week, 14th-20th May 2017
Link opens in new window www.alzheimers.org.uk/info/20167/dementia_awareness_week

"Drug removes Alzheimer’s hallmark amyloid protein from the brains of people with early-stage disease"  (Alzheimer's Society website, August 2016)
Link opens in new window www.alzheimers.org.uk/site/scripts/news_article.php?newsID=2650

Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Visit our library to read Learning To Speak Alzheimer's: The new approach to living positively with Alzheimer's Disease by Joanne Koenig Coste. Or have a look in your local library for this book Link opens in new window
Find this in a library at WorldCat.org

Name Aneurysm
Related to/Also known as See also Subarachnoid Haemorrhage (S.A.H.)
Symptoms A brain aneurysm is a balloon-like swelling resulting from a weakness in the wall of one of the blood vessels supplying blood to the brain.
Types If the aneurysm bursts/ruptures that results in a bleed (brain haemorrhage).
Useful national contacts BASIC (Brain and Spinal Injury Charity)
Link opens in new window www.basiccharity.org.uk
Helpline: 0870 750 000

Brain and Spine Foundation
Link opens in new window www.brainandspine.org.uk
Helpline: 0808 808 1000
Online resources Brain aneurysm (NHS Choices website)
Link opens in new window www.nhs.uk/conditions/aneurysm/pages/introduction.aspx
Our resources The library at The Brain Charity has a range of reference resources on this condition and on a wide-range of disability related issues

Name  Angelman Syndrome
Related to/Also known as   
Symptoms

"This is a rare condition [ ... ] children have epilepsy, learning difficulties, severe speech delay, jerky movements, tongue-thrusting, a characteristic facial appearance and a happy mood with sudden bursts of laughter.  The condition is caused by a genetic factor ... "

Source:  Joint Epilepsy Council
Link opens in new window www.epilepsy.ie/assets/52/5DDA292E-C808-283B-A2DA0E6E2DBAA9DB_document/SCAE__Angelman_Syndrome.pdf

Useful National contacts

Assert (Angelman Syndrome Support Education & Research Trust)
P.O. Box 4926
Nuneaton CV11 9FD
Link opens in new window http://angelmanuk.org
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Phone:  0300 999 0102

Online resources

Angelman syndrome (NHS Choices)
Link opens in new window www.nhs.uk/conditions/angelman-syndrome/Pages/Introduction.aspx


Angelman syndrome (Contact A Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/a/angelman-syndrome/?page=5&f=A


Angelman syndrome (Epilepsy Action)
Link opens in new window www.epilepsy.org.uk/info/syndromes/angelman-syndrome

Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Name  Ankylosing Spondylitis (AS)
Related to/Also known as   
Symptoms

"AS is an inflammatory form of back pain that can also affect other parts of the body, including joints, tendons and eyes, and occurs most frequently in young men."

Source:Link opens in new window Arthritis Research UK

Useful National contacts

NASS (National Ankylosing Spondylitis Society)
Phone:  020 8741 15 15, 9.00-12.00 Monday-Friday
Link opens in new window http://nass.co.uk
Find your local branch:
Link opens in new window http://nass.co.uk/NASS/en/nass-near-you/nass-near-you


Rare Disease UK
Link opens in new window www.raredisease.org.uk
Online resources

Ankylosing spondylitis (NHS Choices)
Link opens in new window www.nhs.uk/Conditions/Ankylosing-spondylitis/Pages/Introduction.aspx


Cochrane Evidence: Physiotherapy for ankylosing spondylitis
Link opens in new window www.cochrane.org/CD002822/MUSKEL_physiotherapy-for-ankylosing-spondylitis

Ankylosing spondylitis (AS) (Arthritis Research UK)
Link opens in new window www.arthritisresearchuk.org/arthritis-information/conditions/ankylosing-spondylitis.aspx

Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Visit our library to read our copy of the Pain Relief Foundation's booklet on Arthritis, which includes information about Ankylosing Spondylitis.

Name Antiphospholipid Syndrome (APS)
Related to/Also known as Sticky Blood Syndrome
Hughes Syndrome
Symptoms APS is sometimes called 'sticky blood syndrome'. This is because people with it have an increased tendency to form clots in blood vessels (also known as thromboses). Any blood vessel can be affected including the veins and the arteries.
Types  
Useful national contacts Hughes Syndrome Foundation
Link opens in new window www.hughes-syndrome.org
Tel: 020 7188 8217
Find a specialist in your area:
Link opens in new window www.hughes-syndrome.org/self-help/specialists-in-your-area.php
Online resources Antiphospholipid syndrome (APS) (NHS Choices)
Link opens in new window www.nhs.uk/conditions/hughes-syndrome/pages/introduction.aspx

Antiphospholipid syndrome (APS) (Arthritis Research UK)
Link opens in new window www.arthritisresearchuk.org/arthritis-information/conditions/antiphospholipid-syndrome.aspx
News and Events  
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

This includes a copy of the Arthritis Research Campaign booklet "Antiphospholipid syndrome".

Name Aphasia
Related to/Also known as Dysphasia
Symptoms Aphasia is an acquired disorder of language, usually caused by stroke, head injury or other neurological condition. People with aphasia find it difficult to understand, speak, read or write language; yet their intellect remains intact.
Types  
Useful national contacts Speakability (Action for Dysphasic Adults)
Helpline: 0808 808 9572
Link opens in new window www.speakability.org.uk
Find your local support group:
Link opens in new window www.speakability.org.uk/AphasiaSelfHelpGroups.html
Connect (The Communication Disability Network)
Link opens in new window www.ukconnect.org
Find your local support group:
Link opens in new window www.ukconnect.org/what-we-do/whats-on-in-my-area
Online resources Aphasia (NHS Choices)
Link opens in new window www.nhs.uk/conditions/aphasia/pages/introduction.aspx
Aphasia (Contact A Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/a/aphasia
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Visit our library to read Aphasia Inside Out: Reflections on communication disability by Susie Parr, Judy Duchan and Carole Pound. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Arachnoiditis
Related to/Also known as  
Symptoms

Describes inflammation which occurs inside the spine, around the spinal cord and spinal nerve roots. Can develop after back injury, spinal surgery, infections such as meningitis, and sometimes after injections into the spine.

Pain comes from nerve roots and generally impacts the lower parts of the body, but can affect the spine in the head, neck and upper back. Damaged nerve roots can cause muscle spasms and jerks, and weakness of muscles.

Types  
Useful national contacts The A Word Support Group
Link opens in new window www.theaword.org
Online resources Arachnoiditis (Patient.info)
Link opens in new window http://patient.info/directory/arachnoiditis
Arachnoiditis (U.S National Organization for Rare Disorders)
Link opens in new window https://rarediseases.org/rare-diseases/arachnoiditis
Arachnoiditis (U.S. National Institute of Neurological Disorders and Stroke)
Link opens in new window www.ninds.nih.gov/disorders/arachnoiditis/arachnoiditis.htm
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

This includes a copy of the Arachnoid Trust's booklet What is Arachnoiditis?  by Lina Talbot.

Name Arteriovenous Malformation (AVM)
Related to/Also known as Arteriovenous Fistula (AVF)
Angioma
Arteriovenous Anomaly
Cavernous Malformation
Venous Malformation
Pulmonary Arteriovenous Malformations (PAVM)
Symptoms AVMs can occur in the brain, spine, lungs, kidneys and the skin. They occur following the abnormal development of blood vessels, which produces a tangle of blood vessels.
Types  
Useful national contacts AVM Support UK
Link opens in new window www.avmsupport.co.uk
Online resources Arteriovenous Malformation (AVM) (The Birthmark Support Group website)
Link opens in new window www.birthmarksupportgroup.org.uk/types-of-birthmark/arteriovenous-malformation-%28avm%29.aspx
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

This includes a copy of the Brain & Spine Foundation's booklet "Vascular Malformations Of The Brain".

Name Arthritis
Related to/Also known as Inflammatory Arthritis
Osteoarthritis
Rheumatoid Arthritis
Symptoms

Arthritis is a condition involving inflammation of the joints, which may then become very painful.

Note that Arthritis is not a neurological condition; however, there are several conditions that come under both Arthritis and Neurological Conditions as an 'umbrella' term.

Types

There are over 200 different types of arthritis.

The most common is Osteoarthritis, which usually develops gradually over a few years.

Rheumatoid Arthritis is a condition which causes the joints in your body to become inflamed. It can be persistent or occur in flare-ups.

Useful national contacts Arthritis Care
Link opens in new window www.arthritiscare.org.uk
Tel: 0808 800 4050
Find support in your area:
Link opens in new window www.arthritiscare.org.uk/in-your-area
ARC Arthritis Research UK
Link opens in new window www.arthritisresearchuk.org
Tel: 0300 790 0400
N.R.A.S. National Rheumatoid Arthritis Society
Link opens in new window www.nras.org.uk
Helpline: 0800 298 7650
Find your local support group:
Link opens in new window www.nras.org.uk/groups
Online resources Arthritis (NHS Choices website)
Link opens in new window www.nhs.uk/conditions/arthritis/pages/introduction.aspx
Arthritis (PubMed Health website)
Link opens in new window www.ncbi.nlm.nih.gov/pubmedhealth/PMHT0024677/
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide-range of disability related issues.

This includes copies of booklets by Arthritis Research UK.

Name Asperger's Syndrome
Related to/Also known as Autism Spectrum Disorders
Autism
Symptoms

Asperger's Syndrome is a form of autism, a condition which affects the way a person communicates and relates to others.

People with Asperger's Syndrome have difficulty in communicating and with social relationships, and exhibit a lack of imagination and creative play. They have fewer problems with language compared with those with autism, and do not usually have the accompanying learning difficulties associated with autism.

Types  
Useful national contacts Asperger's Syndrome Foundation
Link opens in new window www.aspergerfoundation.org.uk
The National Autistic Society
Helpline: 0808 800 4104, 10-4 Mon-Fri
Link opens in new window www.nas.org.uk
Asperger's Support Group Online
resource made by AS people in the UK
Link opens in new window www.assupportgrouponline.org
Online resources What is Asperger's? (National Autistic Society)
Link opens in new window www.autism.org.uk/asperger
Autism and Asperger Syndrome (Mencap)
Link opens in new window www.mencap.org.uk/about-learning-disability/about-learning-disability/learning-disability-and-other-conditions/autism-and-aspe-0
Autism spectrum disorder (NHS Choices)
Link opens in new window www.nhs.uk/conditions/autistic-spectrum-disorder/Pages/Introduction.aspx
Autism Spectrum disorders, including Asperger syndrome (Contact a Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/a/autism-spectrum-disorders-including-asperger-syndrome/??page=7&f=A
News and events  
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Visit our library to read Freaks, Geeks & Asperger Syndrome: A user guide to adolescence by Luke Jackson. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Ataxia
Related to/Also known as Cerebellar Ataxia
Symptoms

People with Ataxia have problems with co-ordination and balance.

Cerebellar Ataxias are a group of rare neurological disorders, many of which are inherited. There is large variation in the severity of the different types, and the rate of progression varies between individuals.

Types

Cerebellar Ataxias - often designated by numbers, see the information on the Ataxia website below.

Friedreich's Ataxia (FA/FRDA) - an inherited, progressive condition, which affects the nervous system.

Ataxia-Telangiectasia - A-T is a rare, degenerative, inherited disease which affects many parts of the body and causes severe disability.

Useful national contacts Ataxia UK
Link opens in new window www.ataxia.org.uk
Helpline: 0845 644 0606
Find your local support group:
Link opens in new window www.ataxia.org.uk/a-list-of-branches-support-groups
A-T Society
Tel. 01582 760733
Link opens in new window www.atsociety.org.uk
Online resources

Ataxia (NHS Choices)
Link opens in new window www.nhs.uk/conditions/ataxia/pages/introduction.aspx

News and events The 100,000 Genomes Project is looking for people with Ataxia for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide-range of disability related issues.

You can read our copies of Ataxia UK booklets, including "Ataxia: a Parent's Guide".

Name  Attention Deficit Disorder (ADD)
Related to/Also known as  Attention Deficit Hyperactivity Disorder (ADHD)
Symptoms A common condition, affecting more boys than girls. It is an impairment of either activity or attention control (or both), and impacts on concentration, impulse control, hyperactivity, motivation and time awareness.
Useful National contacts

ADDISS
Link opens in new window www.addiss.org.uk
Tel: 020 8952 2800
Find your local support group:
Link opens in new window www.addiss.co.uk/ukgroups.htm

Adders
Link opens in new window www.adders.org
Tel: 0871 590 3693

Online resources

Attention deficit hyperactivity disorder (ADHD) (NHS Choices)
Link opens in new window www.nhs.uk/conditions/Attention-deficit-hyperactivity-disorder/Pages/Introduction.aspx

Attention Deficit Hyperactvity disorder (Contact A Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/a/attention-deficit-hyperactivity-disorder/?page=8&f=A

Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Visit our library to read Creating Kids Who Can Concentrate: Proven strategies for beating A.D.D. without drugs by Jean Robb and Hilary Letts. Or have a look in your local library for this book.
Link opens in new window Find this in a library at WorldCat.org

Name Attention Deficit Hyperactivity Disorder (ADHD)
Related to/Also known as Attention Deficit Disorder (ADD)
Symptoms A common condition, affecting more boys than girls. It is an impairment of either activity or attention control (or both), and impacts on concentration, impulse control, hyperactivity, motivation and time awareness.
Types  
Useful national contacts ADDISS
Tel. 020 8952 2800
Link opens in new window www.addiss.co.uk

ADDers.org
Tel. 0871 590 3693
Link opens in new window www.adders.org

Online resources

Attention deficit hyperactivity disorder (ADHD) (NHS Choices)
Link opens in new window www.nhs.uk/conditions/attention-deficit-hyperactivity-disorder/Pages/Introduction.aspx

Attention Deficit Hyperactivity disorder (Contact A Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/a/attention-deficit-hyperactivity-disorder

Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

Visit our library to read Can I tell you about ADHD? A guide for families, friends and professionals by S. Yarney and C. Martin. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Autism
Related to/Also known as Asperger's Syndrome
Symptoms

Autism is a lifelong developmental disability, which affects the way a person communicates and relates to people around them.

People with autism have difficulties with everyday social interaction, with social communication (including not understanding facial expressions and tone of voice), and with imagination. This triad of impairments can occur by itself, but is often accompanied by other developmental disorders and learning disabilities.

Types  
Useful national contacts The National Autistic Society
Link opens in new window www.nas.org.uk
Helpline: 0808 800 4104
Autism Initiatives
Link opens in new window www.autisminitiatives.org/default.aspx

Ambitious About Autism (for children and young people with autism)
Link opens in new window www.ambitiousaboutautism.org.uk
Tel. 020 8815 5444
FACT (Families of Autistic Children Together)
Link opens in new window www.factautism.org.uk
Autism Concern
Link opens in new window www.autismconcern.org
Help and Advice line: 0808 808 9090
Autism Assistance Dogs
Link opens in new window https://supportdogs.org.uk/our-work/autism-assistance-dogs
Scottish Autism
Link opens in new window www.scottishautism.org
Tel. 01259 720 044
Autism Northern Ireland
Link opens in new window www.autismni.org
Tel. 028 9040 1729
Autism Cymru
Link opens in new window www.autism-cymru.org
Tel: 02920 463 263
News and Events


'Autism and vaccines - there is no connection' (Autism Action, 15th February 2017)
Link opens in new window www.autism.org.uk/get-involved/media-centre/news/2017-02-15-trump-vaccines.aspx
Online resources Talk About Autism (online discussion forum for children and young people)
Link opens in new window www.talkaboutautism.org.uk
Your Community (National Autistic Society online discussion forum)
Link opens in new window http://community.autism.org.uk
MediKidz explain Autism
Link opens in new window www.medikidz.com/gb-en/shop/brain-eyes-nerves/medikidz-explain-autism
Autism Spectrum disorders including Asperger's syndrome (Contact a Family website)
Link opens in new window http://tinyurl.com/o3laopu
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide-range of disability related issues.

Visit our library to read Can I tell you about autism? A guide for friends, family and professionals by J. Welton and J. Telford. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Back Pain
Related to/Also known as  see also Pain, Ankylosing Spondylitis
Symptoms Most cases of back pain are caused by strains and minor injuries, rather than more serious causes
Types
  • neck pain 
  • whiplash
  • shoulder pain 
  • frozen shoulder
  • ankylosing spondylitis
  • slipped disc
  • sciatica
Useful national contacts BackCare
Link opens in new window www.backcare.org.uk
Arthritis Care
Link opens in new window www.arthritiscare.org.uk
Helpline 0845 130 2704
General enquiries 020 8977 5474
Arthritis Research UK
This email address is being protected from spambots. You need JavaScript enabled to view it.
Tel. 0300 790 0400

National Ankylosing Spondylitis Society
Link opens in new window www.nass.co.uk
Tel. 020 8948 9117
Email This email address is being protected from spambots. You need JavaScript enabled to view it.
Online resources New guidelines on lower back pain and sciatica (National Institute for Health and Clinical Excellence, November 2016)
Link opens in new window www.nice.org.uk/guidance/ng59
Health & Safety Executive
Link opens in new window www.hse.gov.uk/msd/backpain/livingwith.htm
Tel 0845 345 0055
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Visit our library to read our copy of Arthritis Research UK's booklet on Back Pain.

Name Behçet's Disease
Related to/Also known as Behçet's Syndrome
Symptoms Behçet's Disease is a chronic condition which happens because of disturbances in the body's immune system. The system becomes over-active and produces unpredictable outbreaks of unwanted and exaggerated inflammation. As a result, symptoms occur wherever there is a patch of inflammation, and can be anywhere where there is a blood supply, the most common outbreaks being mouth ulcers.
Types  
Useful national contacts Behçet's Syndrome Society
Link opens in new window http://behcets.org.uk
Helpline: 0845 130 7329
Online resources Behçet's Disease (NHS Choices)
Link opens in new window www.nhs.uk/conditions/behcets-disease/pages/introduction.aspx
Behçet's Syndrome (Arthritis Research UK)
Link opens in new window www.arthritisresearchuk.org/arthritis-information/conditions/behcets-syndrome.aspx
Behçet's Syndrome (Vasculitis UK)
Link opens in new window www.vasculitis.org.uk/about-vasculitis/behcets-disease
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Visit our library to read our copy of Arthritis Research UK's booklet Behçet's Syndrome: This booklet provides information and answers to your questions about this condition.

Name Bell's Palsy
Related to/Also known as  
Symptoms Bell's Palsy is a condition in which one side of the face becomes paralysed. It is usually temporary, and the majority of cases start to get better within three months. The exact cause of Bell's Palsy is unknown, but it is believed that viral infection of the facial nerve is commonly involved.
Types  
Useful national contacts

Bell's Palsy Association
Link opens in new window www.bellspalsy.org.uk
Tel: 0870 4445 460

Facial Palsy UK
Link opens in new window www.facialpalsy.org.uk
Tel: 0300 030 9333

News and events  
Online resources Bell's palsy video (NHS Choices)
Link opens in new window www.nhs.uk/video/pages/bells-palsy.aspx
Bell's Palsy (Facial Palsy UK)
Link opens in new window www.facialpalsy.org.uk/about-facial-palsy/causes-diagnoses/bells-palsy/37
Our resources The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Name Brain Injury
Related to/Also known as Acquired Brain Injury (ABI)
Traumatic Brain Injury (TBI)
Head Injury
Symptoms An injury to the head or face, resulting in trauma to the brain. The brain injury may be mild to severe, and the subsequent impact can likewise be from mild, short-term problems to permanent problems including emotional and behavioural changes, cognitive effects and physical disability.
Types  
Useful national contacts Headway
Helpline: 0808 800 2244
Link opens in new window www.headway.org.uk
Find your local support group:
Link opens in new window www.headway.org.uk/supporting-you/in-your-area
Brain and Spine Foundation
Helpline: 0808 808 1000
Link opens in new window www.brainandspine.org.uk
Rehab UK
Tel. 0121 616 3900
Link opens in new window www.rehab.ie
Brake (road safety charity)
Helpline for road crash victims: 0808 800 0401
Link opens in new window www.brake.org.uk
UK Acquired Brain Injury Forum
Tel. 0845 608 0788
Link opens in new window www.ukabif.org.uk
Brain Injury Rehabilitation and Development
Tel: 0800 0286256
Link opens in new window www.b-i-r-d.org.uk
Child Brain Injury Trust
Helpline: 0303 303 2248
Link opens in new window www.childbraininjurytrust.org.uk
The Legacy Rainbow House: for children with acquired brain injury
Tel: 01704 823 276
Link opens in new window www.thelegacy-rainbowhouse.com
News and events  
Online resources MediKidz explain Acquired Brain Injury
Link opens in new window www.medikidz.com/gb-en/shop/brain-eyes-nerves/medikidz-explain-acquired-brain-injury

Head Trauma (Facial Palsy UK)
Link opens in new window www.facialpalsy.org.uk/about-facial-palsy/causes-diagnoses/trauma/48



 

News and events  
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Visit our library to read Caring for someone with a brain injury by R. Morris and K. Mudd. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Brain tumour
Related to/Also known as  
Symptoms A tumour which occurs in the brain, which may be benign (slow growing, non-cancerous), or malignant (invasive, often grows rapidly and cancerous). Each type of tumour has different characteristics.
Types There are many different types of brain tumours. You can find a useful explanation and list at:
Link opens in new window www.patient.co.uk/health/Cancer-of-the-Brain-and-Brain-Tumours.htm
Useful national contacts Brain Tumour Action
Tel. 0131 466 3116
Link opens in new window www.braintumouraction.org.uk

The Brain Tumour Charity
Tel. 0845 4500 386
Link opens in new window www.thebraintumourcharity.org
Find your local support group:
Link opens in new window www.thebraintumourcharity.org/get-support/support-groups/support-groups-list


BT Buddies
support for high-grade tumours
Tel: 01688 400 687(9am - 9pm)
Link opens in new window www.btbuddies.org.uk
Astro Fund
support for low-grade tumours
Tel. 01485 572767
Link opens in new window www.astrofund.org.uk
Brainstrust
Tel: 01983 292 405
Link opens in new window www.brainstrust.org.uk
Brain and Spine Foundation
Helpline: 0808 808 1000
Link opens in new window www.brainandspine.org.uk
Online resources What should I tell my children about my brain tumour? (Brain and Spine Foundation)
Link opens in new window www.brainandspine.org.uk/what-should-i-tell-my-children-about-my-brain-tumour
MediKidz explain Brain Tumours
Link opens in new window www.medikidz.com/gb-en/shop/brain-eyes-nerves/medikidz-explain-brain-tumours
My Cancer Treatment
provides up-to-date and accessible information about NHS cancer services in England
Link opens in new window www.mycancertreatment.nhs.uk
Losing Myself: The Reality of Life with a Brain Tumour (The Brain Tumour Charity)
Link opens in new window www.thebraintumourcharity.org/Resources/SDBTT/the-research/documents/the-brain-tumour-charity-final-digital.pdf
News and events  
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Visit our library to read Living with a Brain Tumor: Dr Peter Black's Guide to Taking Control of Your Treatment. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

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