Name Dementia
Related to/Also known as  
Symptoms

Dementia is a term used to describe various different brain disorders, that have in common a loss of brain function that is usually progressive and eventually severe. The most common type of dementia is Alzheimer's Disease.

Symptoms of dementia include loss of memory, confusion and problems with speech.

Types There are over 100 different types of dementia. In addition to Alzheimer's Disease, Vascular Dementia, and Dementia With Lewy Bodies are the most common. For more information see the Alzheimer's SocietyLink opens in new window website
Useful national contacts

Dementia UK
Provides mental health nurses specialising in dementia care, called Admiral Nurses.
Link opens in new window www.dementiauk.org
Tel. 020 7697 4160

Admiral Nurses
Link opens in new window www.dementiauk.org/what-we-do/admiral-nurses


Young Dementia UK
Link opens in new window www.youngdementiauk.org


Lewy Body Society
Link opens in new window http://lewybody.org
Tel. 0131 473 2385


Alzheimer's Society (covers England, Wales, N. Ireland)
Link opens in new window www.alzheimers.org.uk
Helpline: 0845 300 0336


Alzheimer Scotland (covers Scotland)
Link opens in new window www.alzscot.org
Helpline: 0808 808 3000


Memory & Alzheimer's Cafés UK Directory
Link opens in new window www.memorycafes.org.uk


Huntingdon's Disease Association
Link opens in new window www.hda.org.uk
Tel. 0151 331 5444 


Parkinson's UK
Link opens in new window www.parkinsons.org.uk
Tel: 0808 800 0303


Stroke Association
Link opens in new window www.stroke.org.uk
Tel. 0303 3033 100


Dementia Research (NHS National Institute for Health Research)
Join dementia research - register your interest in dementia research
Link opens in new window www.joindementiaresearch.nihr.ac.uk

Online resources Alzheimer's Society - The Dementia Guide (YouTube)
Link opens in new window http://youtu.be/RLBuygIcttU

Alzheimer's Society factsheets in audio format
Link opens in new window http://bit.ly/1fgojzY


Dementia - Scotland (British Deaf Association video with BSL and text)
Link opens in new window www.bda.org.uk/health-dementia-scot

News and events

The 100,000 Genomes Project is looking for people with Dementia for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

Our resources

Can I tell you about dementia? The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Visit our library to read Can I tell you about dementia? A guide for families, friends and carers by J. Welton and J. Telford. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Down's Syndrome
Related to/Also known as  Down Syndrome
Symptoms
"Down's syndrome, also known as Down syndrome, is a genetic condition that typically causes some level of learning disability and characteristic physical features."
Source: NHS Choices
Link opens in new window www.nhs.uk/conditions/downs-syndrome/pages/introduction.aspx
Useful National contacts

Down's Syndrome Association
Helpline: 0333 1212 300
Link opens in new window www.downs-syndrome.org.uk
Find your local support group:
Link opens in new window www.downs-syndrome.org.uk/for-families-and-carers/local-support-groups


Down's Syndrome Scotland
Phone: 0131 442 8840
Link opens in new window www.dsscotland.org.uk

Down's Heart Group
Phone: 0300 102 1644
Link opens in new window www.dhg.org.uk
Mencap
charity for people with a learning disability
Helpline 0808 808 1111
Link opens in new window www.mencap.org.uk
Find your local support group:
Link opens in new window www.mencap.org.uk/search/groups
News and events  
Online resources Down's syndrome (NHS Choices)
Link opens in new window www.nhs.uk/conditions/downs-syndrome/pages/introduction.aspx
Down syndrome (Contact A Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/d/down-syndrome
Our resources

The library at the Brain Charity has a range of reference resources on this condition and on a wide range of disability related issues.

This includes information on Down's and epilepsy, and on Down's and dementia.

Name  Dyslexia
Related to/Also known as  
Symptoms Dyslexia is a specific kind of learning difficulty, where a child of normal intelligence has persistent and significant problems with reading, writing and spelling, and sometimes with arithmetic and musical notation.
Types  
Useful national contacts The British Dyslexia Association
Tel. 0333 405 4567.
Opening times: 10 a.m. – 12.30 and 1 p.m. - 4 p.m. Mondays to Fridays. Closed Wednesday afternoons
Link opens in new window www.bdadyslexia.org.uk
Dyslexia Action
Tel. 01784 222300
Link opens in new window www.dyslexiaaction.org.uk
Dyslexia Foundation
Tel. 0151 709 0545
Link opens in new window http://dyslexiafoundation.co.uk
Dyslexia-SplD Trust
Link opens in new window www.thedyslexia-spldtrust.org.uk
Online resources

Dyslexia (Contact-A-Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/d/dyslexia/?page=4&f=D

Dyslexia - Symptoms (NHS Choices)
Link opens in new window www.nhs.uk/Conditions/Dyslexia/Pages/Symptoms.aspx

News and events  
Our resources

Can I tell you about dementia? The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Visit our library to read Can I tell you about Dyslexia? A guide for friends, family and professionals by Alan M. Hultquist. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Dyspraxia
Related to/Also known as

Developmental Co-ordination Disorder (D.C.D.)

Motor Learning Difficulties

Perceptuo-Motor Dysfunction

Symptoms Dyspraxia is a developmental disorder of organisation and planning of physical movement. Developmental dyspraxia (see below) affects co-ordination, spatial awareness, perception, language and short-term memory.
Types

Developmental dyspraxia is when someone is born with dyspraxia.

Acquired dyspraxia can be caused by a stroke or head injury.

Useful national contacts The Dyspraxia Foundation
Tel. 01462 454986, 10am-1pm, Mon-Friday
Link opens in new window www.dyspraxiafoundation.org.uk
Online resources

This film shows the ways in which a boy with developmental co-ordination disorder/dyspraxia has overcome barriers to learning and participation with the support of his school and others
Link opens in new window www.education.gov.uk/b00201451/sen-skills/sen-induc-resources/daniel-can-do

News and events  
Our resources

can I tell you about Dyspraxia? The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Visit our library to read Can I tell you about Dyspraxia? A guide for friends, family and professionals, by Maureen Boon. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Dystonia
Related to/Also known as  
Symptoms Dystonia is a disorder which causes muscles in the body to contract and spasm involuntarily. Spasms may affect one part of the body or many parts simultaneously and can be very painful.
Types

The Dystonias can be defined in terms of which body parts are involved.

  • Focal - affects one part
  • Segmental - 2 or more adjacent body parts
  • Multifocal - 2 or more non-adjacent parts
  • Generalised

Primary focal dystonia are the most common including:

  • Cervical dystonia (or spasmodic torticollis) affects the neck muscles.
  • Blepharospasm affects the muscles of the eyelids.
  • Hand dystonia/writers cramp affects the hand and finger muscles
  • Laryngeal dystonia (or spasmodic dysphonia) affects the vocal chords.
  • Oromandibular dystonia affects the muscles in the jaw, mouth and tongue.
Useful national contacts The Dystonia Society
Helpline: 0845 458 6322
Link opens in new window www.dystonia.org.uk
Online resources MediKidz help to explain Dystonia management
Link opens in new window www.medikidz.com/gb-en/the-medikidz-help-to-explain-dystonia-management
News and events

The 100,000 Genomes Project is looking for people with Dystonia for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

Sign Joanne's petition: Dystonia needs to be recognised by all medical professions & occupational therapists
Link opens in new window www.change.org/p/joanne-hillis-raise-awareness-for-a-neurological-condition-called-dystonia

Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

This includes the Dystonia Society's booklet "Dystonia Self-Help Techniques".