|Related to/Also known as|
|Symptoms||Dystonia is a disorder which causes muscles in the body to contract and spasm involuntarily. Spasms may affect one part of the body or many parts simultaneously and can be very painful.|
The Dystonias can be defined in terms of which body parts are involved.
Primary focal dystonia are the most common including:
|Useful national contacts||The Dystonia Society
Helpline: 0845 458 6322
|Online resources||MediKidz help to explain Dystonia management
|News and events||
Dystonia Awareness Week, 29th April - 7th May, 2017
The 100,000 Genomes Project is looking for people with Dystonia for research into their DNA and genes
Sign Joanne's petition: Dystonia needs to be recognised by all medical professions & occupational therapists
The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.
This includes the Dystonia Society's booklet "Dystonia Self-Help Techniques".