Name  Facial Palsy
Related to/Also known as 

Facial paralysis

Bell's Palsy
Stroke
Symptoms of Facial Palsy

"The term facial palsy generally refers to weakness of the facial muscles, mainly resulting from temporary or permanent damage to the facial nerve.

"When a facial nerve is either non-functioning or missing, the muscles in the face do not receive the necessary signals in order to function properly. This results in paralysis of the affected part of the face, which can affect movement of the eye(s) and/or the mouth, as well as other areas."

Source: Facial Palsy UK

Useful National contacts Facial Palsy UK
Link opens in new window www.facialpalsy.org.uk
Tel. 0300 030 9333

General enquiries: This email address is being protected from spambots. You need JavaScript enabled to view it.Support: This email address is being protected from spambots. You need JavaScript enabled to view it.
Find your local support group: Link opens in new window www.facialpalsy.org.uk/support/local-groups

Changing Faces: supports people who have any condition that affects their appearance
Link opens in new window www.changingfaces.org.uk
Tel. 0300 012 0275
This email address is being protected from spambots. You need JavaScript enabled to view it.

Online resources

Facial Paralysis (MedlinePlus)
Link opens in new windowhttps://medlineplus.gov/ency/article/003028.htm

Facial nerve palsy (University Hospital Southampton NHS Trust, PDF file)
Link opens in new window www.uhs.nhs.uk/Media/Controlleddocuments/Patientinformation/Eyes/FacialPalsy-patientinformation.pdf

Facial palsy (Queen Victoria Hospital NHS Foundation Trust)
Link opens in new window www.qvh.nhs.uk/our-services/plastic-surgery-and-burns/facial-palsy

Our resources

The library at the Brain Charity has a range of resources on Facial Palsy and on a wide range of disability related issues.

Name Fibromyalgia
Related to/Also known as Myofascial pain syndrome
Symptoms of Fibromyalgia
Fibromyalgia means "pain coming from the muscles and fibrous tissues" (such as tendons and ligaments), and the condition is characterised by muscle aches and pains. Other symptoms often include fatigue, sleep disturbance and headache.
Types  
Useful national contacts Fibromyalgia Action UK
Helpline: 0844 887 2444, 10am-4pm, Mon-Fri
Link opens in new window www.fmauk.org
UK Fibromyalgia
Tel. 01202 259155
Link opens in new window www.ukfibromyalgia.com
Online resources NHS Choices: Fibromyalgia
Link opens in new window www.nhs.uk/conditions/fibromyalgia/pages/introduction.aspx
NHS Choices video: Fibromyalgia: Suzanne's Story
Link opens in new window www.nhs.uk/video/pages/fibromyalgia.aspx
Cochrane Evidence: Acupuncture for fibromyalgia
Link opens in new windowwww.cochrane.org/CD007070/MUSKEL_acupuncture-for-fibromyalgia
Cochrane Evidence: Exercise for fibromyalgia
Link opens in new window www.cochrane.org/CD003786/MUSKEL_exercise-for-fibromyalgia

"Exercise 'beneficial' for easing fibromyalgia-related fatigue" (Arthritis Research UK)
Link opens in new window www.arthritisresearchuk.org/news/general-news/2013/march/exercise-beneficial-for-easing-fibromyalgia-related-fatigue.aspx

Fibromyalgia Forum (The Fibromyalgia Magazine)
Link opens in new window bit.ly/1fOjBNg
Centers for Disease Control (U.S.): Fibromyalgia
Link opens in new window www.cdc.gov/arthritis/basics/fibromyalgia.htm
Our resources

Living with fibromyalgia The library at The Brain Charity has a range of resources on Fibromyalgia and on a wide range of disability-related issues.

Visit our library to read Living with Fibromyalgia by Christine Craggs-Hinton. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Fragile X Syndrome
Related to/Also known as  see also Autism
Symptoms of Fragile X Syndrome

"[Fragile X] is the most common cause of inherited learning disability. It affects boys and girls and causes a wide range of problems with learning and behaviour, from mild to severe. Boys are usually more seriously affected than girls. FXS is caused by an alteration in a particular gene that lies on the X chromosome."

Source: St George's Healthcare NHS Trust
Link opens in new window www.southwestthamesgenetics.nhs.uk/patient_leaflets_Fragile%20X.pdf

Types  
Useful national contacts The Fragile X Society
Tel: 01371 875 100
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: Link opens in new window www.fragilex.org.uk
Mencap
Helpline 0808 808 1111
Link opens in new window www.mencap.org.uk
Online resources What is Fragile X syndrome? (The National Autistic Society)
Link opens in new window www.autism.org.uk/about-autism/related-conditions/fragile-x-syndrome.aspx

Fragile X syndrome (Contact a Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/f/fragile-x-syndrome/
Fragile X syndrome (Mencap)
Link opens in new window www.mencap.org.uk/about-learning-disability/about-learning-disability/learning-disability-and-other-conditions/fragile-x-syndrom

Our resources The library at The Brain Charity has a range of resources on Fragile X Syndrome and on a wide range of disability-related issues.

Name Fronto-temporal Dementia (FTD)
Related to/Also known as includes:
Behavioural Variant Frontotemporal Dementia (including Pick's Disease)
Primary Progressive Aphasia
Alcohol-Related Dementias
Symptoms of Fronto-temporal Dementia

Fronto-temporal dementias include Pick's Disease. These dementias commonly affect people of working age.

The disease is difficult to diagnose because the sufferer is younger than expected, and displays different symptoms. Diagnosis takes up to three years.

Types  
Useful national contacts Frontotemporal Dementia Support Group
Telephone:  Jill Walton 07592 540555
Website: Link opens in new window www.ftdsg.org
Online resources

Frontotemporal dementia - Diagnosis (NHS Choices)
Link opens in new window www.nhs.uk/Conditions/frontotemporal-dementia/Pages/Diagnosis.aspx

Alcohol-Related Brain Damage (Alcohol Concern)
Link opens in new window www.alcoholconcern.org.uk/arbd

Our resources

The library at The Brain Charity has a range of resources on Fronto-temporarl Dementia and on a wide range of disability-related issues.

Books on Dementia

Visit our library to read our copy of the book What if it's not Alzheimer's? : a caregiver's guide to dementia by Gary Radin and Lisa Radin. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

 

Name Functional Neurological Disorder (F.N.D.)
Related to/Also known as Functional Movement Disorders
NEAD (Non-Epileptic Attack Disorder)
Symptoms of Functional Neurological Disorder

"Approximately one-sixth of all patients seen by the neurology service will receive a diagnosis of functional neurological symptoms. This condition is also called 'medically unexplained neurological symptoms'.

"This common condition covers a range of symptoms but most often people experience changes in their ability to move and feel their limbs. People may experience difficulty with walking, balance, problems controlling and moving arms and legs, and experience odd or unpleasant sensations in the body like tingling or pain. Symptoms may fluctuate or be there most of the time causing a lot of distress.

"The difference between functional neurological symptoms and other neurological conditions such as “multiple sclerosis” or “Parkinson’s disease” is that functional neurological symptoms are not caused by structural disease of the nervous system (brain, spine and nerves). The structure of the body is still well and has no damage but the function of it is not working."

Source: Link opens in new window NHS Greater Glagow and Clyde

Types  
Useful national contacts

FND Action
registered charity in England
c/o Involve Kent, 39-48 Marsham Street
Maidstone, Kent ME14  1HH
Link opens in new window www.fndaction.org.uk
email This email address is being protected from spambots. You need JavaScript enabled to view it.

Online resources

Functional and Dissociative Neurological Symptoms : a patient's guide
Link opens in new window www.neurosymptoms.org/welcome/4533052089

'Functional Neurological Disorders' (includes 'functional seizures', NHS Sheffield Teaching Hospitals website)
Link opens in new window www.sth.nhs.uk/neurosciences/neurology/neurology-psychotherapy-service/functional-neurological-disorders

'Dissociative (Non-Epileptic) Attacks / Blackouts' (Functional and Dissociative Neurological Symptoms: A Patient's Guide website)
Link opens in new window
www.neurosymptoms.org/blackoutsattacks/4533052168
Our resources The library at The Brain Charity has a range of resources on Functional Neurological Disorder and on a wide range of disability-related issues.