Name Hemiplegia
Related to/Also known as Alternating hemiplegia
Hemiplegic migraine
Symptoms of Hemiplegia

Hemiplegia is a condition, the effects of which are similar to a stroke. It is caused by damage to the brain (most often before or around the time of birth) and it results in a varying degree of weakness and lack of control on one side of the body.  In one child this may be very obvious (he or she may have little use of one hand, may limp or have poor balance); in another child it will be so slight that it only shows when attempting specific physical activities.

Approximately half the children have additional diagnoses such as epilepsy, visual impairment or speech difficulties. Other challenges can include perceptual problems, specific learning difficulties or emotional and behavioural problems.

Types  
Useful national contacts HemiHelp
Link opens in new window www.hemihelp.org.uk
helpline: 0845 123 2372
Eplilepsy Society
Link opens in new window www.epilepsysociety.org.uk
helpline: 01494 601 400
Stroke Association
Link opens in new window www.stroke.org.uk
phone: 033 3033 100
UK Children's Neurological Research Association
Link opens in new window www.ukcnrc.org.uk
News and events  
Online resources What is hemiplegia? An animated film (YouTube video by HemiHelp)
Link opens in new window www.youtube.com/watch?v=WGvzannP7fw&feature=youtu.be
Our resources The library at The Brain Charity has a range of resources on Hemiplegia and on a wide range of disability-related issues.

Name Hereditary Spastic Paraplegia (HSP)
Related to/Also known as Familial Spastic Paraplegia (FSP)
Symptoms of HSP
A group of inherited disorders, which are characterised by progressive weakness and stiffness of the legs.
Types  
Useful national contacts HSP Support Group
Helpline: 01702 218184
Link opens in new window www.hspgroup.org
Online resources Hereditary spastic paraplegia (NHS Choices)
Link opens in new window www.nhs.uk/Conditions/spastic-paraplegia/Pages/introduction.aspx

Familial Spastic Paraplegia (Contact A Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/f/familial-spastic-paraplegia/??page=3&f=H
News and events

The 100,000 Genomes Project is looking for people with H.S.P. for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

Our resources The library at The Brain Charity has a range of resources on Hereditary Spastic Paraplegia (HSP) and on a wide range of disability-related issues.

Name Huntington's Disease (HD)
Related to/Also known as Huntington's Chorea (HC)
Symptoms of Huntington's Disease

An hereditary, neurodegenerative disorder of the central nervous system, which causes emotional, intellectual and movement problems. The course of Huntington's is characterised by involuntary movement of the limbs, trunk, and face, progressive loss of mental abilities, and the development of psychiatric problems.

Huntington's Disease usually appears in middle age (30-50 years), but can develop in younger and older people.

Types Juvenile HD refers to anyone who develops symptoms of the disease before the age of 20. Those affected often experience more muscle rigidity than when developed in adulthood.
Useful national contacts Huntington's Disease Association
Suite 24
Liverpool Science Park
Innovation Centre 1
131 Mount Pleasant
Liverpool L3 5TF
Tel. 0151 331 5444
Link opens in new window www.hda.org.uk
Find your local branch:
Link opens in new window http://hda.org.uk/hda/branches
Email This email address is being protected from spambots. You need JavaScript enabled to view it.
Scottish Huntington's Association
Link opens in new window www.hdscotland.org
News and events

 

Online resources Huntington's disease (NHS Choices)
Link opens in new window www.nhs.uk/Conditions/Huntingtons-disease/Pages/Introduction.aspx
Our resources

The library at The Brain Charity has a range of resources on Huntington's Disease and on a wide range of disability-related issues.

Visit our library to read Learning to Live with Huntington's Disease: One Family's Story by Sandy Sulaiman. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Hydrocephalus
Related to/Also known as Spina Bifida
Symptoms of Hydrocephalus
Hydrocephalus is caused by a build up of cerebro-spinal fluid (CSF) in the ventricles of the brain. It can occur in association with Spina Bifida. Other causes include infections such as meningitis, premature birth, a head injury or a stroke. Hydrocephalus can lead to problems with skills such as concentration, short-term memory, organisation and co-ordination.
Types  
Useful national contacts Shine (formerly ASBAH, the Association for Spina Bifida and Hydrocephalus)
Link opens in new window www.shinecharity.org.uk
Helpline: 01733 555988
Online resources Spina bifida (NHS Choices)
Link opens in new window www.nhs.uk/conditions/spina-bifida/pages/introduction.aspx
Hydrocephalus (NHS Choices)
Link opens in new window www.nhs.uk/conditions/hydrocephalus/pages/introduction.aspx
Our resources The library at The Brain Charity has a range of resources on Hydrocephalus and on a wide range of disability-related issues.