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Name Huntington's Disease (HD)
Related to/Also known as Huntington's Chorea (HC)
Symptoms

An hereditary, neurodegenerative disorder of the central nervous system, which causes emotional, intellectual and movement problems. The course of Huntington's is characterised by involuntary movement of the limbs, trunk, and face, progressive loss of mental abilities, and the development of psychiatric problems.

Huntington's Disease usually appears in middle age (30-50 years), but can develop in younger and older people.

Types Juvenile HD refers to anyone who develops symptoms of the disease before the age of 20. Those affected often experience more muscle rigidity than when developed in adulthood.
Useful national contacts Huntington's Disease Association
Suite 24
Liverpool Science Park
Innovation Centre 1
131 Mount Pleasant
Liverpool L3 5TF
Tel. 0151 331 5444
Link opens in new window www.hda.org.uk
Find your local branch:
Link opens in new window http://hda.org.uk/hda/branches
Email info@hda.org.uk
Scottish Huntington's Association
Link opens in new window www.hdscotland.org
News and events

 

Online resources Huntington's disease (NHS Choices)
Link opens in new window www.nhs.uk/Conditions/Huntingtons-disease/Pages/Introduction.aspx
Our resources

The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.

Visit our library to read Learning to Live with Huntington's Disease: One Family's Story by Sandy Sulaiman. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org