|Related to/Also known as||Von Recklinghausen's Disease|
|Symptoms||A genetic disorder, mainly of the nervous tissue, causing benign tumours on nerve tissue anywhere in the body.|
Neurofibromatosis Type 1 (Nf1) is the most common type, causing tumours (non-malignant and bumps) to form on nerve endings anywhere in the body. Other effects can include learning difficulties, social problems and epilepsy.
Neurofibromatosis Type 2 (Nf2) is a much rarer disorder of the nerve tissue, resulting in acoustic neuromas or vestibular Schwannomas on the nerve that takes messages from the ear to the brain. This can then result in progressive deafness and communication problems.
|Useful national contacts||The Neurofibromatosis Association
Tel: 020 8439 1234
Neurofibromatosis type 1 (NHS Choices)
Neurofibromatosis type 2 (NHS Choices)
|News and Events|
The library at The Brain Charity has a range of reference resources on this condition and on a wide range of disability-related issues.
This includes copies of the Neurofibromatosis Association's booklets for children "Polly's Best Friend: A Booklet for Girls under 10" and "The Winning Goal: A Booklet for Boys under 10".