Name Pain
Related to/Also known as see also Back Pain
Symptoms Pain is a common feature of many neurological conditions. Learning to cope with pain can help individuals to take control of their conditions.
Types  
Useful national contacts Action on Pain
Link opens in new window www.action-on-pain.co.uk

British Pain Society
Link opens in new window www.britishpainsociety.org


Pain Concern
Link opens in new window www.painconcern.org.uk


Pain Relief Foundation
Link opens in new window www.painrelieffoundation.org.uk


BackCare 
Link opens in new window www.backcare.org.uk


Tame the Pain
Link opens in new window www.tamethepain.co.uk

Online resources

Physiotherapy works: Chronic pain (Chartered Society of Physiotherapy factsheet)
Link opens in new window www.csp.org.uk/publications/physiotherapy-works-chronic-pain

MediKidz explain Chronic Pain
Link opens in new window www.medikidz.com/gb-en/shop/brain-eyes-nerves/medikidz-explain-chronic-pain

Our resources

The library at The Brain Charity has a range of resources on Pain and on a wide range of disability-related issues.

Manage your pain: Practical and Positive Ways of Adapting to Chronic Pain This includes a copy of the book Manage your pain: Practical and Positive Ways of Adapting to Chronic Pain by Dr Michael Nicholas. Or look for this book in a library near you Link opens in new window.

Name Parkinson's
Related to/Also known as Idiopathic Parkinson's Disease
Symptoms of Parkinson's
A progressive neurological condition, which can affect talking, walking, swallowing, writing etc. Characterised by slowness in the initiation and performance of movement, and sometimes tremor, usually at rest.
Types  
Useful national contacts

Parkinson's UK
Link opens in new window www.parkinsons.org.uk
Tel: 0808 800 0303
Find a support group near you:
Link opens in new window www.parkinsons.org.uk/content/local-groups


Dance for Parkinson's Network UK
Link opens in new window www.danceforparkinsonsuk.org


Younger People's Groups
Tel. 0808 800 0303
Link opens in new window www.parkinsons.org.uk/youngerpeoplesgroups


   
Online resources

Physiotherapy works: Parkinson's (Chartered Society of Physiotherapists factsheet)
Link opens in new window www.csp.org.uk/publications/physiotherapy-works-parkinsons-disease


MediKidz explain Parkinson's Disease
Link opens in new window www.medikidz.com/gb-en/shop/brain-eyes-nerves/medikidz-explain-parkinsons-disease


Parkinson's Disease (U.S. National Center for Complementary and Integrative Health)
Link opens in new window https://nccih.nih.gov/health/parkinson-disease


Parkinson's Disease (British Deaf Association video with BSL and text)
Link opens in new window www.bda.org.uk/health-parkinsons-disease

Our resources

The library at The Brain Charity has a range of resources on Parkinson's and on a wide range of disability-related issues.

Our Mum has Parkinson's Visit our library to read Our Mum has Parkinson's by Karen Goodall, who was diagnosed with Parkinson's at the age of 32. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Pituitary Disorders
Related to/Also known as  
Symptoms of Pituitary Disorders
Disorders of the pituitary gland are relatively rare. The most common problem of the pituitary gland is when a benign tumour develops. Symptoms include headaches and visual problems.
Types

Some of the problems related to the pituitary gland are listed below. For more information see the Pituitary Foundation.

  • Acromegaly is caused by overproduction of the growth hormone in adults.
  • Craniopharyngioma is a rare tumour of the pituitary region, which exerts pressure on the hypothalamus and often on the pituitary gland.
  • Cushings's Disease is a problem arising in the pituitary gland, caused by the overproduction of the hormone ACTH. This leads to the overproduction of cortisol by the adrenal glands.
  • Hypopituitarism is the underproduction of one or more of the hormones in the pituitary gland; most often caused by a benign tumour.
  • Non-functioning tumour is the commonest type of tumour in the pituitary gland. It does not produce any hormones itself, but can cause other problems, such as headaches.
Useful national contacts Pituitary Foundation
Link opens in new window www.pituitary.org.uk
Support and Information Helpline:  0117 370 1320.
Find your local support group:
Link opens in new window www.pituitary.org.uk/support-for-you/support-in-your-area
Online resources Pituitary disorder (Contact-A-Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/p/pituitary-disorders/?page=3&f=P
News and Events  
Our resources The library at The Brain Charity has a range of resources on Pituitary Disorders and on a wide range of disability-related issues.

Name Polymyositis
Related to/Also known as Myositis
Symptoms of Polymyositis
Polymyositis is an inflammatory muscle disease that causes varying degrees of decreased muscle power. The disease has a gradual onset; the most common symptom is muscle weakness.
Types Dermatomyositis is a related condition where a particular skin rash occurs, along with muscle inflammation.
Useful national contacts Myositis UK
Link opens in new window www.myositis.org.uk
Tel: 02380 449708
Online resources Myositis (polymyositis and dermatomyositis) (NHS Choices website)
Link opens in new window www.nhs.uk/conditions/myositis/Pages/Introduction.aspx
Our resources

The library at The Brain Charity has a range of resources on Polymyositis and on a wide range of disability-related issues.

Myositis: Facts, feelings & future hopes Visit our library to read Myositis: Facts, feelings & future hopes, edited by Jenny Fenton. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Post-Polio Syndrome
Related to/Also known as  
Symptoms of Post-Polio Syndrome
'Post-polio syndrome' describes a condition where some polio surviviors re-present (on average 30 years after their original illness) with further deterioration in functional ability, increased pain and increased muscle weakness.
Types  
Useful national contacts British Polio Fellowship
Link opens in new window www.britishpolio.org.uk
Tel: 0800 018 0586
Online resources
Post-polio syndrome (NHS Choices)
Link opens in new window www.nhs.uk/conditions/polio-and-post-polio-syndrome-/Pages/Introduction.aspx
News and events
 
Our resources

The library at The Brain Charity has a range of resources on Post-polio Syndrome and on a wide range of disability-related issues.

Post-Polio Syndrome: A guide for Polio survivors & their families Visit our library to read Post-Polio Syndrome: A guide for Polio survivors & their families by Dr Julie K Silver. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Prader-Willi Syndrome
Related to/Also known as HHHO Syndrome
Symptoms of Prader-Willi syndrome
Prader-Willi syndrome is a genetic disorder, which is present from birth. It is characterised by a number of behavioural and psychological features, including low muscle tone, excessive appetite (leading to obesity if not controlled), and immature physical development . Most have borderline or moderate learning difficulties.
Types  
Useful national contacts Prader-Willi Syndrome Association
Link opens in new window www.pwsa.co.uk
Tel: 01332 365676
Online resources Prader-Willi syndrome (NHS Choices)
Link opens in new window www.nhs.uk/conditions/prader-willi-syndrome/Pages/Introduction.aspx
Our resources The library at The Brain Charity has a range of resources on Prader-Willi syndrome and on a wide range of disability-related issues.

Name Progressive Supranuclear Palsy (PSP)
Related to/Also known as Steele-Richardson-Olszewski (SRO) Syndrome
Symptoms of PSP PSP is a progressive brain disease, leading to the death of nerve endings (neurons) in the area of the brain controlling balance, vision, movement, speech and swallowing. Symptoms reflect problems in these areas; however, the severity and progression varies considerably from one individual to another.
Types  
Useful national contacts PSP Association
Link opens in new window www.psassociation.org.uk
Tel: 01327 322410
Helpline: 0300 0110 122
Online resources Progressive Supranuclear Palsy (NHS Choices)
Link opens in new window www.nhs.uk/conditions/progressive-supranuclear-palsy/pages/introduction.aspx
Our resources

The library at The Brain Charity has a range of resources on Progressive Supranuclear Palsy and on a wide range of disability-related issues.

Visit our library to read Charity Begins at Home, the story of the PSP Association, by Michael Koe. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org