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Corticobasal degeneration (CBD)

#133 by amanda
Corticobasal degeneration (CBD) was created by amanda
I am writing hoping for some advice for my father. His doctor gave me your leaflet in hope you can help.

He has Corticobasal degeneration (CBD) is a rare condition that can cause gradually worsening problems with movement, speech, memory and swallowing. It's often also called corticobasal syndrome (CBS). CBD is caused by increasing numbers of brain cells becoming damaged or dying over time.

He is in full time employment at the moment, working for a Laboratory company called Alfred H Knights.

He has been sent for an assessment in Liverpool and had a risk assessment because he has had a few falls in work and cant keep his balance sometimes. The report came back that he was fit for work for the time being.

I would just like to know his options if he did decide to stop working and what his choices are.

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#134 by Janet
Replied by Janet on topic Corticobasal degeneration (CBD)
Dear Amanda

Thank you for your enquiry. We are able to provide you with help and support, both on the condition itself and making sure that our father has the right support and also the consequences of being diagnosed with the condition. We have an Employment Adviser who can meet with you and your father to give advice and support. He can also speak over the telephone if that is better for you.

Please email This email address is being protected from spambots. You need JavaScript enabled to view it. with your contact details and we can get in touch with you, or ring 0151 298 2999 and ask to speak to the Information Team

We look forward to hearing from you

Janet
Information and Advice Officer

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#219 by Emy White
Replied by Emy White on topic Corticobasal degeneration (CBD)
There is no effective treatment that slows the progression of
KBD. However, some of the symptoms can be
treated. Depending on the symptoms available, your doctor
can try:
• Levodopa to improve slow motion
• Drugs for controlling myoclonus
• Injection of botulinum toxin to reduce
stiffness in certain muscles of the arm or leg
• Other medicines for problematic urination, anxiety,
depression, cognitive problems, etc.
• Physiotherapy, professional reorientation, and / or
speech therapy to maintain function.

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- #220 by Emy White
Replied by Emy White on topic Corticobasal degeneration (CBD)
The cause of the onset of CBD is unknown. CBD
causes abnormal brain aging, which progresses with
over time. Healthy people have a protein in their brains,
called tau. It is of great importance for the normal functioning of neurons. However, people with CBD have
an abnormal tau protein that accumulates in the brain. He
damages neurons and other brain cells in certain
area. Researchers have not yet figured out why
this tau protein is abnormal in CBD. CBD is not hereditary
and the occurrence of and is not associated with exposure to certain factors
of the environment. There is no effective treatment that slows the progression of CBD. However, some of the symptoms can be treated with cannabis oil.

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