A
Name  Angelman Syndrome
Related to/Also known as   
Symptoms of Angelman Syndrome

"Angelman syndrome (AS) is a genetic disorder rather than an epilepsy syndrome. AS is a rare condition, which affects about one in 15,000 children...  Children have learning difficulties and speech delay that are usually severe. They also have jerking movements, tongue-thrusting ... and a happy mood with sudden bursts of laughter and epilepsy ... "

SourceEpilepsy Action

Useful national contacts

AngelmanUK
Link opens in new window http://angelmanuk.org
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Support line:  0300 999 0102

Children & young people

Sibling support (AngelmanUK)
Link opens in new window https://tinyurl.com/y6bu3j3y

Preparing for adult life (Contact, charity for families with disabled children)
Link opens in new window https://contact.org.uk/advice-and-support/preparing-for-adult-life

Online resources

Link opens in new window Easy-Read guide to Coronavirus from Mencap

Coronavirus information and useful links (AngelmanUK)
Link opens in new window www.angelmanuk.org/coronavirus-information-and-useful-links

Angelman syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/yaqtmygj


Angelman syndrome (Contact, charity for families with disabled children)
Link opens in new windowhttps://tinyurl.com/s37jl4s


Angelman syndrome (Epilepsy Action)
Link opens in new window https://tinyurl.com/y8n87cna

 Living with a condition (The Brain Charity)

News and Events Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)
Link opens in new window https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Our resources

The library at The Brain Charity has a wide range of resources on disability related issues.