Name | CBD (Corticobasal Degeneration) |
See Progressive Supranuclear Palsy |
Name | CBD (Corticobasal Degeneration) |
See Progressive Supranuclear Palsy |
Name | C.R.P.S. (Complex Regional Pain Syndrome) |
See Complex Regional Pain Syndrome (C.R.P.S.) |
Name | CSF Leak |
See Cerebrospinal Fluid Leak |
Name | Carpal Tunnel Syndrome |
Related to/Also known as | |
Symptoms of Carpal Tunnel Syndrome |
Carpal Tunnel Syndrome occurs when the nerve running into the hand becomes entrapped or compressed at the wrist, as it passes through the 'carpal tunnel.' Early symptoms include tingling affecting parts or all of the hand and symptoms are often worse at night. |
Types | |
Useful national contacts |
Versus Arthritis Find local support: www.versusarthritis.org/in-your-area |
Children & young people | Carpal Tunnel Syndrome (KidsHealth) ![]() |
Online resources |
Coronavirus and how to manage your pain at home (Versus Arthritis) Carpal tunnel syndrome (Versus Arthritis) Carpal tunnel syndrome (NHS Choices) Carpal Tunnel Syndrome (Diabetes.co.uk) Carpal tunnel syndrome exercises (Chartered Society of Physiotherapy website) Carpal-Tunnel.net (NHS website) ![]() Carpal tunnel syndrome (Versus Arthritis website) ![]() Carpal Tunnel Syndrome Information Page (U.S. National Institute of Neurological Disorders and Stroke website)
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Our resources |
Visit our library to read our copy of Arthritis Research UK's booklet Carpal Tunnel Syndrome. |
Name | Cauda Equina Syndrome (CES) |
Related to/Also known as | |
Symptoms of Cauda Equina Syndrome |
The nerves of the Cauda Equina are responsible for the supply of nerves to the bladder, bowels, lower limbs and also supply sensation to the skin around the bottom and back passage. This syndrome has a complex spectrum of signs and symptoms. If your doctor has suspicions of CES, then in some cases it can be confirmed with an MRI scan. |
Types | Saddle Anaesthesia Nerve Root Pain |
Useful national contacts | Cauda Equina Syndrome UK![]() This email address is being protected from spambots. You need JavaScript enabled to view it. Tel. 0800 989 0053 Cauda Equina Syndrome Association ![]() Helpline 03335 777113 Spinal Injuries Association |
Children & young people | Cauda Equina Syndrome (Sunrise Children's Hospital, Canada)![]() |
Online resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) Lumbar decompression surgery - when it's used (NHS Choices)
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Our resources | The library at The Brain Charity has a range of resources on this condition and on a wide range of disability-related issues. |
Name | Cavernoma |
Related to/Also known as | Cavernous Angioma, Cavernous Haemangioma, or Cerebral Cavernous Malformation |
Symptoms of Cavernoma |
A cavernoma is a cluster of abnormal blood vessels in the brain or spinal cord. They are not cancerous and for many people they are asymptomatic (no symptoms). For those who do have symptoms they can include haemorrhages, seizures, headaches, tremor and other neurological deficits. |
Types | |
Useful national contacts |
The Cavernoma Society Cavernoma Alliance UK (CAUK) |
Children & young people | CaverFamilies CaverFamilies events and meetings are exclusively for young people who have, or have had, cavernoma; their parents and siblings. ![]() |
Online resources |
Coronavirus Vaccine Advice (Cavernoma Alliance UK Coronavirus and Cavernoma (Cavernoma Alliance UK) Cavernomas (NHS Choices website)
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Our resources | ![]() The library at The Brain Charity has a range of resources on this condition and on a wide range of disability-related issues. This includes a copy of the Cavernoma Alliance UK booklet "Caverfamilies: Talking about cavernoma with children". |
Name | Centronuclear Myopathies |
Related to/Also known as | Centronculear/Myotubular Myopathy; Congenital Myopathies |
Symptoms of Centronuclear Myopathy |
Centronuclear and myotubular myopathy are rare inherited neuromuscular diseases of which there are three forms: x-linked, autosomal recessive, and autosomal dominant. The conditions manifest themselves as defects in the cell structure of voluntary muscles, causing low muscle tone and affecting children and adults at various stages in life. |
Types | |
Useful national contacts | The Information Point for Centronuclear and Myotubular Myopathy Email: This email address is being protected from spambots. You need JavaScript enabled to view it. ![]() |
News and Events | Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)![]() |
Online resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) Myotubular/Centronuclear Myopathies (Contact, charity for families with dsabled children)
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Our resources | The library at The Brain Charity has a range of resources on this condition and on a wide range of disability-related issues. |
Name | Cerebral Palsy |
Related to/Also known as | |
Symptoms of Cerebral Palsy |
Cerebral Palsy is a disorder of movement and posture. It is due to damage to, or failure in, the areas of the brain which control movement. The effects vary from individual to individual; difficulties include awkwardness in walking, or of hand and arm movements, or speech. |
Types |
Spastic Cerebral Palsy - stiffens muscles and decreases range of movement of joints. Athetoid Cerebral Palsy - frequent involuntary movements, speech hard to understand and hearing problems are common. Ataxic Cerebral Palsy - difficult to balance, poor spatial awareness. |
Useful national contacts | Scope Helpline: 0808 800 3333 ![]() Find your local support services: ![]() The Foundation for Conductive Education ![]() Tel. 0121 442 5556 Mencap Helpline 0808 808 1111 ![]() |
Children & young people |
Family services (Scope) Preparing for adult life (Contact, charity for families with disabled children) |
Online resources |
Coronavirus information (Scope) Cerebral palsy (NHS Choices website) ![]()
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News and events |
Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)
Research Participants Needed! Research investigation on the relationship between cerebral palsy, anxiety and participation (Scope and the University of Bristol, June 2020) |
Our resources |
Visit our library to read Can I tell you about Cerebral Palsy? A guide for friends, family and professionals by M. Stanton and K. Stanton. Or have a |
Name | Cerebrospinal Fluid (CSF) Leak |
Related to/Also known as |
Low-pressure headache May sometimes be caused by Spinal Injury, Brain Injury, or Subarachnoid Haemorrhage; or may sometimes be caused by medical procedures, such as those relating to Hydrocephalus or Multiple Sclerosis. |
Symptoms of CSF Leak |
Source: The Brain & Spine Foundation
Source: U.S. Spinal CSF Leak Foundation |
Types |
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Useful national contacts |
CSF Leak Association Brain & Spine Foundation |
Online resources |
Coronavirus (COVID-19) & Cerebrospinal Fluid (CSF) Leaks (CSF Leak Association) Spontaneous Intracranial Hypotension (U.S. National Organization for Rare Disorders) CSF Leak: A Curable Cause of Headache (Cedars-Sinai Hospital, U.S.) Spinal CSF Leak Foundation (U.S.)
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News and events | "Duncan James: I had spinal fluid coming out of my back and doctors told me I might never walk again" (Daily Mail, August 2016) |
Our resources |
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Name | Charcot-Marie-Tooth Disease |
Related to/Also known as | Hereditary Motor and Sensory Neuropathy |
Symptoms of Charcot-Marie-Tooth Disease |
Charcot-Marie-Tooth Disease is a condition which affects the peripheral nerves (in the arms and legs) and leads to progressive muscle weakness. Both the sensory nerves, which send messages back to the brain about touch and feel, and motor nerves, controlling movement, are affected. |
Types | |
Useful national contacts |
Charcot-Marie-Tooth UK Muscular Dystrophy UK |
Children & young people | CMT Kids For young people with CMT ![]() |
Online resources | COVID-19: Guidelines on Charcot Marie Tooth disease from the Neuromuscular Service, NHNN![]()
Coronavirus - COVID-19 (Charcot-Marie-Tooth UK) ![]() Charcot-Marie-Tooth disease (NHS)
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News and events |
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Our resources | ![]() The library at The Brain Charity has a range of resources on this condition and on a wide range of disability-related issues. Visit our library to read Charcot Marie Tooth Disease: A Practical Guide. |
Name | Chiari malformation |
Related to/Also known as |
Syringomyelia |
Symptoms of Chiari malformation |
Chiari Malformation is a disorder affecting the nervous system, where fluid-filled cavities develop inside the spinal cord. A variety of conditions lead to the formation of syringomyelia cavities. The most common factor is obstruction to the normal flow of CSF (cerebrospinal fluid within the spinal cord). Possible causes include Hindbrain Hernia, also referred to as Syringomyelia, and spinal cord injury. Symptoms vary, ranging from neck and arm pain, through to fairly severe disability, with muscle weakness and paralysis. |
Types | |
Useful national contacts |
Ann Conroy Trust Chiari Malformation Group: A space for you (Facebook group of the Brain & Spine Foundation) |
Children & young people |
Has your child been diagnosed with Chiari? (Conquer Chiari, U.S. charity) Chiari I Malformation (For Parents) (KidsHealth) |
News and events | |
Online resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) Chiari malformation (Brain & Spine Foundation booklet) Chiari malformation and syringomyelia (The Walton Centre) ![]() Arnold-Chiari malformation and driving (Gov.uk website) Chiari Malformation (NHS Choices) ![]() Syringomyelia Fact Sheet (U.S. National Institute of Neurological Disorders and Stroke) Syringomyelia (Contact, charity for families with disabled children) https://tinyurl.com/u2dfgr7 Chiari malformations (Brain & Spine Foundation) ![]() ![]() Chiari malformation (Medline Plus website) ![]() Chiari Malformation Patient Information (The Walton Centre NHS Trust)
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Our resources | ![]() The library at The Brain Charity has a range of resources on Chiari Malformation and on a wide range of disability-related issues. This includes the booklet "Jessica's Journey: One family's experience of chiari malformation in a child" by Kirsty Leigh. |
Name | Chronic Fatigue Syndrome (CFS) |
Related to/Also known as |
see also Myalgic Encephalomyelitis (ME) |
Symptoms of Chronic Fatigue Syndrome |
M.E. is a potentially chronic and disabling neurological disorder, which is characterised by persistent fatigue and muscle pain. Symptoms can include cognitive problems such as loss of memory and concentration, recurrent sore throat and enlarged neck glands, disturbed sleep patterns and persistent headaches. |
Types | |
Useful national contacts | ACTION for M.E. Tel: 0845 123 2314 (Mon-Fri, 11am-1pm) ![]() Find your local support group: https://www.actionforme.org.uk/get-support-now/help-and-support-for-you/crisis-support-and-advocacy-service/ M.E. Association Helpline: 0844 576 5326 (open every day 10am-12 noon, 2-4pm, 7-9pm) ![]() Find your local support group: ![]() |
Children & young people | Association of Young People with ME support and advice for young people aged from 5-26 and their families Helpline: 0330 2211223 This email address is being protected from spambots. You need JavaScript enabled to view it. |
Online resources |
Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’ (ME Association, July 2020) Chronic fatigue syndrome (NHS Choices website) ![]() Cochrane Evidence: Exercise as treatment for patients with chronic fatigue syndrome ![]()
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News and events | 'Landmark chronic fatigue trial could treat two-thirds' (BBC website, November 2016)![]() |
Our resources |
Visit our library to read Can I Tell You About ME/Chronic Fatigue Syndrome? A guide for friends, family and professionals by J. Rayner and J. Lithgoe-Hay. |
Name | Cluster Headaches |
Related to/Also known as |
Migrainous Neuralgia see also Migraine |
Symptoms of Cluster Headaches |
Cluster Headache is an excruciating pain that affects one side of the head. Each attack develops suddenly, usually without any warning. Attacks last from 15 minutes to 3 hours and usually occur in clusters - several attacks over a few weeks or months and then they stop for a while. |
Types |
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Useful national contacts |
OUCH (UK) |
Children & young people | Cluster headache in children (Great Ormond Street Hospital) ![]() |
News and Events | |
Online resources |
Cluster Headaches and PIP (The Brain Charity) Cluster headaches (NHS Choices) Cluster headache (Migraine Trust) ![]() Headache (Brain & Spine Foundation booklet, includes Cluster Headache) ![]() Cluster Headaches (Patient.info) ![]() Cochrane Evidence: Normal pressure oxygen therapy and hyperbaric oxygen therapy for migraine and cluster headaches Coronavirus - information for people with neurological problems (Brain & Spine Foundation)
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News and events | Cluster Headache Survey. Research volunteers needed! |
Our resources | ![]() The library at The Brain Charity has a range of resources on Cluster Headaches and on a wide range of disability-related issues. Visit our library to read the booklet A Guide to the Understanding of Cluster Headache by OUCH. |
Name | Complex Regional Pain Syndrome (CRPS) |
Related to/Also known as | Reflex Sympathetic Dystrophy (RSD) |
Symptoms of CRPS |
CRPS is a chronic pain disorder, which can occur after trivial injury, often involving soft tissue around joints. The pain is extremely severe, and far outweighs that normally produced by tissue damage. It can go into spontaneous remission or be a long-lasting problem. |
Types | Type I - CRPS I, also known as RSD (when there is no identifiable nerve injury) Type II - CRPS II is what used to be known as Causalgia (where there is an identifiable nerve injury) |
Useful national contacts | CRPS-UK![]() Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Burning Nights Pain Concern Action on Pain |
Children & young people | Complex Regional Pain Syndrome in Children (Stop Childhood Pain, U.S.)![]() |
New and events | |
Online resources |
Coronavirus (COVID-19) and CRPS (Burning Nights)
Complex regional pain syndrome (NHS Choices) Complex Regional Pain Syndrome (CRPS) (Versus Arthritis) ![]() Complex Regional Pain Syndrome (Medline Plus)
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Our resources |
Visit our library to read Complex Regional Pain Syndrome (CRPS) Explained. For Teenagers, by Teenagers by G. R. Lauder and R. Massey. |
Name | Creutzfeldt-Jakob Disease (CJD) |
Related to/Also known as | |
Symptoms of CJD |
CJD is a rare, untreatable, fatal illness affecting the brain. It is one type of the group of transmissible spongiform encephalopathies (TSEs). CJD is divided into four different forms, which all have different causes and symptoms, but they all have the same basic disease process of the accumulation of abnormal prion protein in the brain tissue: |
Types |
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Useful national contacts | CJD Support Network![]() Tel: 01630 673973 National CJD Surveillance Unit National Prion Clinic Tel. 020 3448 4037/4038 ![]() |
Children & young people | Creutzfeldt-Jakob disease facts for kids (Kpedia) ![]() |
News and events | |
Online resources | Creutzfeldt-Jakob Disease (NHS Choices website)![]() Creutzfeldt-Jakob Disease Information Page (U.S. National Institute of Neurological Disorders and Stroke website) ![]() Notification and support for people exposed to the risk of Creutzfeldt-Jakob disease (CJD) (or other prion diseases) through medical treatment (Cochrane website)
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Our resources |
The library at The Brain Charity has a range of resources on Creutzfeldt-Jakob Disease (CJD) and on a wide range of disability-related issues. |