|Related to/Also known as||Cavernous Angioma, Cavernous Haemangioma, or Cerebral Cavernous Malformation|
|Symptoms of Cavernoma
||A cavernoma is a cluster of abnormal blood vessels in the brain or spinal cord. They are not cancerous and for many people they are asymptomatic (no symptoms). For those who do have symptoms they can include haemorrhages, seizures, headaches, tremor and other neurological deficits.|
|Useful national contacts||
The Cavernoma Society
Cavernoma Alliance UK (CAUK)
|Children & young people||CaverFamilies
CaverFamilies events and meetings are exclusively for young people who have, or have had, cavernoma; their parents and siblings.
Coronavirus and Cavernoma (Cavernoma Alliance UK)
Cavernomas (NHS Choices website)
Living with a condition (The Brain Charity)
The library at The Brain Charity has a range of resources on this condition and on a wide range of disability-related issues.
This includes a copy of the Cavernoma Alliance UK booklet "Caverfamilies: Talking about cavernoma with children".