||Cerebrospinal Fluid (CSF) Leak
|Related to/Also known as
May sometimes be caused by Spinal Injury, Brain Injury, or Subarachnoid Haemorrhage; or may sometimes be caused by medical procedures, such as those relating to Hydrocephalus or Multiple Sclerosis.
|Symptoms of CSF Leak
"A cerebrospinal fluid leak occurs when there is a tear or hole in the membranes that surround the brain and spinal cord, and the fluid that surrounds these structures escapes. As a result of this leak, the overall pressure within the skull can drop (which is referred to as intracranial hypotension) and this can cause headaches as well as other neurological symptoms."
Source: The Brain & Spine Foundation
" Common symptoms
- Headache that is worse when upright and better when horizontal (but other patterns do occur)
- Nausea and vomiting
- Neck pain or stiffness
- Change in hearing (muffled, underwater, tinnitus) "
Source: U.S. Spinal CSF Leak Foundation
- Spontaneous cerebrospinal fluid leak (SCSFL)
- Cerebrospinal fluid rhinorrhoea
|Useful national contacts
CSF Leak Association
CSF Leak Association Facebook page:
Brain & Spine Foundation
Helpline freephone 0808 808 1000,
Monday to Thursday, from 9am to 4pm, and Fridays, from 9am to 1pm. Not open on Bank Holidays.
Coronavirus (COVID-19) & Cerebrospinal Fluid (CSF) Leaks (CSF Leak Association)
Spontaneous Intracranial Hypotension (U.S. National Organization for Rare Disorders)
CSF Leak: A Curable Cause of Headache (Cedars-Sinai Hospital, U.S.)
Spinal CSF Leak Foundation (U.S.)
Living with a condition (The Brain Charity)
|News and events
||"Duncan James: I had spinal fluid coming out of my back and doctors told me I might never walk again" (Daily Mail, August 2016)
The library at the Brain Charity has a wide range of resources on disability-related issues. This includes a copy of the Brain & Spine Foundation's booklet on headache.