Name Dementia
Related to/Also known as  
Symptoms of Dementia

Dementia is a term used to describe various different brain disorders, that have in common a loss of brain function that is usually progressive and eventually severe. The most common type of dementia is Alzheimer's Disease.

Symptoms of dementia include loss of memory, confusion and problems with speech.

Types There are over 100 different types of dementia. In addition to Alzheimer's Disease, Vascular Dementia, and Dementia With Lewy Bodies are the most common. For more information see the Alzheimer's SocietyLink opens in new window website
Useful national contacts

Dementia UK
Provides mental health nurses specialising in dementia care, called Admiral Nurses.
Link opens in new window www.dementiauk.org
Tel. 020 7697 4160

Admiral Nurses
Link opens in new window www.dementiauk.org/what-we-do/admiral-nurses


Young Dementia UK
Link opens in new window www.youngdementiauk.org


Lewy Body Society
Link opens in new window http://lewybody.org
Tel. 0131 473 2385


Alzheimer's Society (covers England, Wales, N. Ireland)
Link opens in new window www.alzheimers.org.uk
Helpline: 0845 300 0336
Alzheimer's Society: Carer Information and Support Programme (CrISP)
Link opens in new window https://tinyurl.com/y89h96xa


Alzheimer Scotland (covers Scotland)
Link opens in new window www.alzscot.org
Helpline: 0808 808 3000


Memory & Alzheimer's Cafés UK Directory
Link opens in new window www.memorycafes.org.uk


Huntingdon's Disease Association
Link opens in new window www.hda.org.uk
Tel. 0151 331 5444 


Parkinson's UK
Link opens in new window www.parkinsons.org.uk
Tel: 0808 800 0303


Stroke Association
Link opens in new window www.stroke.org.uk
Tel. 0303 3033 100

Children & young people 

Explaining dementia to children and young people (Alzheimer's Society)
Link opens in new window https://tinyurl.com/y4bcceg4

Resources for Children and Young People (Dementia UK)
Link opens in new window www.dementiauk.org/children-and-young-people

Online resources

Alzheimer's Society - The Dementia Guide (YouTube)
Link opens in new window http://youtu.be/RLBuygIcttU

Early Warning Signs of Dementia & Alzheimers (Home Advisor, U.S.)
Link opens in new window www.homeadvisor.com/r/dementia-alzheimers-signs

Making your home dementia friendly (Alzheimer's Society)
Link opens in new window https://tinyurl.com/yajevnxq

News and events

Are you interested in helping “memory and ageing” research?
You may be eligible to participate in a study at Liverpool John Moores University exploring how individual memory strategies predict future cognitive decline.
For further information or to take part, please email Deborah Talamonti: This email address is being protected from spambots. You need JavaScript enabled to view it.


The 100,000 Genomes Project is looking for people with Dementia for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

Our resources

Can I tell you about dementia? The library at The Brain Charity has a range of resources on Dementia and on a wide range of disability-related issues.

Visit our library to read Can I tell you about dementia? A guide for families, friends and carers by J. Welton and J. Telford. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Down's Syndrome
Related to/Also known as  Down Syndrome
Symptoms of Down's Syndrome
"Down's syndrome, also known as Down syndrome, is a genetic condition that typically causes some level of learning disability and characteristic physical features."
Source: NHS Choices
Link opens in new window https://tinyurl.com/cy8q7ad
Useful national contacts

Down's Syndrome Association
Helpline: 0333 1212 300
Link opens in new window www.downs-syndrome.org.uk
Find your local support group:
Link opens in new window https://tinyurl.com/yahn8r42


Down's Syndrome Scotland
Phone: 0131 442 8840
Link opens in new window www.dsscotland.org.uk

Down's Heart Group
Phone: 0300 102 1644
Link opens in new window www.dhg.org.uk
Mencap
charity for people with a learning disability
Helpline 0808 808 1111
Link opens in new window www.mencap.org.uk
Find your local support group:
Link opens in new window www.mencap.org.uk/search/groups
Children & young people New Parent Pack (Down Syndrome Association)
Link opens in new window https://tinyurl.com/y8t2a4bn
News and events  
Online resources Down's syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/cy8q7ad

Down syndrome (Contact A Family)
Link opens in new window https://tinyurl.com/y7cay2bg
Our resources

The library at the Brain Charity has a range of resources on Down's Syndrome and on a wide range of disability related issues.

This includes information on Down's and epilepsy, and on Down's and dementia.

Name  Dysautonomia
Related to/Also known as
  • Riley-Day syndrome
  • HSAN Type III
Symptoms of Dysautonomia

"Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control.

"Dysautonomia can also occur secondary to other medical conditions, such as diabetes, multiple sclerosis, rheumatoid arthritis, celiac [coeliac], Sjogren's syndrome, lupus, and Parkinson's."

Source: Dysautonomia International
www.dysautonomiainternational.org

Types Includes:
  • Diabetic Autonomic Neuropathy (DAN)
  • Familial dysautonomia
  • Generalized dysautonomia
  • Multiple System Atrophy
  • Postural tachycardia syndrome (PoTS)
Useful national contacts

Familial Dysautonomia United Kingdom (FDUK)
Link opens in new window www.familialdysautonomia.co.uk
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Jnetics (formally Jewish Genetic Disorders UK)
Link opens in new window www.jnetics.org
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

UK Potsies
Link opens in new window www.ukpotsies.org.uk

Dysautonomia International
Link opens in new window www.dysautonomiainternational.org

Childen & young people

Living a Life With Dysautonomia in Children (Dysautonomia POTS Syndrome website)
Link opens in new window https://tinyurl.com/y3ua6jps

Brain injury - Dysautonomia (Kids Health Info, Royal Children's Hospital Melbourne)
Link opens in new window https://tinyurl.com/y4rrvdul

News and events "Camilla sees benefits of medical alert dogs on charity visit" (Wolverhampton Express and Star, February 20, 2019)
Link opens in new window https://tinyurl.com/y5h6su29
Online resources

Familial Dysautonomia ('Contact' charity)
Link opens in new window http://tinyurl.com/y2qeyayb

Autonomic Neuropathy (Diabetes.co.uk)
Link opens in new window http://tinyurl.com/y4hy3g4k

Postural tachycardia syndrome (PoTS) (NHS website)
Link opens in new window https://tinyurl.com/ycxju2b9

Dysautonomia Information Page (U.S. National Institute of Neurological Disorders and Stroke)
Link opens in new window http://tinyurl.com/y499zwts

Dysautonomia, Familial (U.S. National Organizarion for Rare Disorders)
Link opens in new window http://tinyurl.com/yyuajgvm

Our resources

The library at the Brain Charity has a range of resources on Dysautonomia and on a wide range of disability-related issues.

Name  Dyscalculia
Related to/Also known as 
Symptoms of Dyscalculia
"Dyscalculia is a specific learning difference, which affects the ability to acquire arithmetical skills and an intuitive grasp of numbers"

Source: Loughborough University Link opens in new window https://tinyurl.com/y9rrv6cb

"Developmental Dyscalculia (DD) is a specific learning disorder that is characterised by impairments in learning basic arithmetic facts, processing numerical magnitude and performing accurate and fluent calculations. these difficulties must be quantifiably below what is expected for an individual’s chronological age, and [is not] caused by poor educational or daily activities or by intellectual impairments"

Source: British Dyslexia Association  Link opens in new window https://tinyurl.com/y8qobbjo

Types
  • Developmental Dyscalculia:  a specific learning disability (SpLD)
  • Acalculia:  as a result of brain injury or stroke, a person may no longer be able to do even basic maths
Useful national contacts

The British Dyslexia Association
Tel. 0333 405 4567.
Opening times: 10 a.m. – 12.30 and 1 p.m. - 4 p.m. Mondays to Fridays. Closed Wednesday afternoons
Link opens in new window www.bdadyslexia.org.uk

Scope
Helpline: 0808 800 3333
Link opens in new window www.scope.org.uk
Find your local support services:
Link opens in new window www.scope.org.uk/Support/services-directory

Children & young people Information for parents (About Dyscalculia website)
Link opens in new window http://aboutdyscalculia.org/parents.html
Online resources

The Dyscalculia Information Centre
Link opens in new window www.dyscalculia.me.uk

What is Dyscalculia? (East Midlands Dyslexia Association)
Link opens in new window https://tinyurl.com/yaz566nn

Dyscalculia (Contact charity)
Link opens in new window https://tinyurl.com/yaflvktt

Dyscalculia (Judy Hornigold)
Link opens in new window http://judyhornigold.co.uk/dyscalculia.html

News and events  
Our resources

The library at the Brain Charity has a wide range of resources on disability-related issues.

Name  Dyslexia
Related to/Also known as  
Symptoms of Dyslexia
Dyslexia is a specific kind of learning difficulty, where a child of normal intelligence has persistent and significant problems with reading, writing and spelling, and sometimes with arithmetic and musical notation.
Types  
Useful national contacts The British Dyslexia Association
Tel. 0333 405 4567.
Opening times: 10 a.m. – 12.30 and 1 p.m. - 4 p.m. Mondays to Fridays. Closed Wednesday afternoons
Link opens in new window www.bdadyslexia.org.uk
Dyslexia Action
Tel. 01784 222300
Link opens in new window www.dyslexiaaction.org.uk
Dyslexia Foundation
Tel. 0151 709 0545
Link opens in new window http://dyslexiafoundation.co.uk
Dyslexia-SplD Trust
Link opens in new window www.thedyslexia-spldtrust.org.uk
Children & young people Getting help for your child (British Dyslexia Association)
Link opens in new window https://tinyurl.com/y6nq89zf
Online resources

Dyslexia (Contact charity)
Link opens in new window https://tinyurl.com/y7x6tuur

Dyslexia - Symptoms (NHS website)
Link opens in new window https://tinyurl.com/zwv8smq

Dyslexia Guide (Hampstead & Frognal Tutors Ltd)
with resources including helpful strategies, and tests, plus details of apps and the latest technology to help you to better manage reading and writing
Link opens in new window https://tinyurl.com/y8fzg7je

News and events  
Our resources

Can I tell you about dementia? The library at The Brain Charity has a range of resources on Dyslexia and on a wide range of disability-related issues.

Visit our library to read Can I tell you about Dyslexia? A guide for friends, family and professionals by Alan M. Hultquist.

Name Dyspraxia
Related to/Also known as
  • Developmental Co-ordination Disorder (D.C.D.)
  • Motor Learning Difficulties
  • Perceptuo-Motor Dysfunction
  • Apraxia
Symptoms of Dyspraxia
Dyspraxia is a developmental disorder of organisation and planning of physical movement. Developmental dyspraxia (see below) affects co-ordination, spatial awareness, perception, language and short-term memory.
Types
  • Developmental dyspraxia is when someone is born with dyspraxia.
  • Acquired dyspraxia can be caused by a stroke or head injury.
Useful national contacts The Dyspraxia Foundation
Tel. 01462 454986, 10am-1pm, Mon-Friday
Link opens in new window www.dyspraxiafoundation.org.uk
Children & young people Dyspraxia in children (Dyspraxia Foundation)
Link opens in new window https://tinyurl.com/yxnyl2yp
Online resources Neurodiversity and Co-occurring differences: Dyspraxia (DCD) (British Dyslexia Associarton)
Link opens in new window https://tinyurl.com/yxnczlp2
News and events 'How Doctor Who tackles dyspraxia in series 11' (Radio Times, October 2018)
Link opens in new window https://tinyurl.com/ybmgdcvz
Our resources

can I tell you about Dyspraxia? The library at The Brain Charity has a range of resources on Dyspraxia and on a wide range of disability-related issues.

Visit our library to read Can I tell you about Dyspraxia? A guide for friends, family and professionals, by Maureen Boon. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name  Dystonia
Related to/Also known as  
Symptoms of Dystonia
Dystonia is a disorder which causes muscles in the body to contract and spasm involuntarily. Spasms may affect one part of the body or many parts simultaneously and can be very painful.
Types

The Dystonias can be defined in terms of which body parts are involved.

  • Focal - affects one part
  • Segmental - 2 or more adjacent body parts
  • Multifocal - 2 or more non-adjacent parts
  • Generalised

Primary focal dystonia are the most common including:

  • Cervical dystonia (or spasmodic torticollis) affects the neck muscles.
  • Blepharospasm affects the muscles of the eyelids.
  • Hand dystonia/writer's cramp affects the hand and finger muscles
  • Laryngeal dystonia (or spasmodic dysphonia) affects the vocal chords.
  • Oromandibular dystonia affects the muscles in the jaw, mouth and tongue.
Useful national contacts The Dystonia Society
Helpline: 0845 458 6322
Link opens in new window www.dystonia.org.uk
Find your local support group:
https://tinyurl.com/y2ga7azz
• The Liverpool & Merseyside Support Group meets at The Brain Charity
Children & young people Children and dystonia (The Dystonia Society)
Link opens in new window https://www.dystonia.org.uk/children-and-dystonia
Online resources Dystonia (NHS website)
Link opens in new window www.nhs.uk/conditions/dystonia
Dystonia and Parkinson's disease (Dystonia Society)
Link opens in new window https://tinyurl.com/yyo2pot8
News and events

The 100,000 Genomes Project is looking for people with Dystonia for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

Sign Joanne's petition: Dystonia needs to be recognised by all medical professions & occupational therapists
Link opens in new window https://tinyurl.com/y9y6d6pv

Our resources

Medikidz Explain Dystonia ManagementThe library at The Brain Charity has a range of resources on Dystonia and on a wide range of disability-related issues.

This includes the book for children and young people Medikidz Explain Dystonia Management.