Name Encephalitis
Related to/Also known as  
Symptoms of Encephalitis
 Encephalitis is an inflammation of the brain, usually occurring as a result of viral infection.
Types  Many types including:
  • Rasmussen's Encephalitis
  • Hashimoto's Encephalitis
  • Subacute-sclerosing panencephalitis
Useful national contacts Encephalitis Society

Tel. 01653 699 599
Link opens in new window www.encephalitis.info

Children and young people Encephalitis in children: E-learning (Encephalitis Society)
www.encephalitis.info/encephalitis-in-children-e-learning
News and events  
Online resources  
Our resources

The library at The Brain Charity has a range of resources on this condition and on a wide range of disability-related issues.

We have copies of the Encephalitis Society's guidebooks Encepahalitis in Adults and Encephalitis in Children, which are also available to download as PDF files from the Encephalitis Society's website.

Our library includes a copy of the book Medikidz Explain Encephalitis, which is also available to request from the Encephaltis Society.

Gilley the Giraffe... who changedVisit our library to read our copy of the children's book Gilley the Giraffe... who Changed by Nimmi Channa and Phil Lynch.


Name Epilepsy
Related to/Also known as  
Symptoms of Epilepsy
Epilepsy is the tendency to have recurrent seizures, which tend to recur spontaneously. These seizures occur when there is an electrical disturbance in the brain, and the signals it sends to the body become mixed up, rather like an electrical storm in the brain.
Types

There are many different types of seizure, usually divided into two categories - generalised or partial. Typically a seizure may last from a few seconds to a few minutes.

Partial seizure - affects only part of the brain. Consciousness is not lost in a simple partial seizure; consciousness is impaired in a complex partial seizure.

Generalised seizures affect the whole brain, and often involve a loss of consciousness. They include the Tonic Clonic seizure where the person falls down, and their body stiffens and shakes; the Atonic seizure where the body goes floppy rather than stiff; the Absence seizure, which usually shows itself in a blank stare lasting a few seconds; the Myoclonic seizure, which is very brief and involves a muscle jerk.

Useful national contacts Epilepsy Action
Helpline: 0808 800 5050
Link opens in new window www.epilepsy.org.uk
Find local branches and groups:
Link opens in new window www.epilepsy.org.uk/involved/branches
• Epilepsy Action meets at The Brain Charity on the last Thursday of the month

Epilepsy Society
Helpline: 01494 601400
Link opens in new window www.epilepsysociety.org.uk
David Lewis Centre For Epilepsy
Tel. 01565 640000
Link opens in new window www.davidlewis.org.uk
Seizure Alert Dogs
Link opens in new window https://tinyurl.com/ybdbtyx
The Daisy Garland - charity offering help and support to those whose lives are touched by drug-resistant epilepsy
Link opens in new window www.thedaisygarland.org.uk

Mersey Regional Epilepsy Association
Helpline 0151 298 2666
Link opens in new window www.epilepsymersey.org.uk

SUDEP Action: Making every epilepsy death count
http://sudep.org/
Tel. 01235 772850

Children and young people

Young EpilepsyYoung Epilepsy
Provides information and support for young people, and for parents and carers
Helpline: 01342 831 342
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Link opens in new window www.youngepilepsy.org.uk

 


Epilepsy Action: Just for kids
Epilepsy info for kids
Link opens in new window www.epilepsy.org.uk/info/children
Online resources What to do when someone has a seizure (Epilepsy Action)
Link opens in new window https://tinyurl.com/y9ky4up2

First Aid for seizures - Epilepsy Action video (YouTube)

Free smartphone app to help manage your epilepsy (Epilepsy Society)
Link opens in new window https://tinyurl.com/y99e8fco

EpSMon - award-winning self-monitoring App designed for adults who experience seizure
Link opens in new window www.epsmon.com


Free e-learning resources from Epilepsy Action
Link opens in new window http://learn.epilepsy.org.uk
You may be entitled to free or discounted travel if your seizures mean you can’t have a driving licence (Epilepsy Society)
Link opens in new window https://tinyurl.com/ycl743wc

Medical cannabis products available on prescription (BBC, November 2018)
Link opens in new window www.bbc.co.uk/news/health-46045487

 

The 100,000 Genomes Project is looking for people with Epilepsy for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

"Husband programmes smartwatch to detect wife's seizures" (January 2016)
Link opens in new window https://tinyurl.com/ycfd8f2q

Our resources

Epilepsy and your child The library at The Brain Charity has a range of resources on Epilepsy and on a wide range of disability-related issues.

Visit our library to read Epilepsy and your child by Richard Appleton. Or look for this book in your local library.
Find this in a library at WorldCat.org

Name Essential Tremor
Related to/Also known as  
Symptoms of Essential  Tremor
Essential Tremor is a neurological disorder, in which patients have a rhythmic trembling of one or more hands, head, legs, trunk and voice. The tremor is more visible during movement than at rest.
Types  
Useful national contacts

National Tremor Foundation
Link opens in new window www.tremor.org.uk
Helpline: 01708 386399
Find your local support group:
Link opens in new window www.tremor.org.uk/support-groups.html
• The North West Essential Tremor Group meets at The Brain Charity's Coffee Morning

Children and young people Essential Tremor in Children (National Tremor Foundation)
Link opens in new window https://tremor.org.uk/et-in-children.html
News and Events  
Online resources Essential tremor (NHS Choices)
Link opens in new window https://tinyurl.com/y7j8w78a

International Essential Tremor Foundation
Link opens in new window www.essentialtremor.org
Our resources Essential tremor: The facts

The library at The Brain Charity has a range of  resources on Essential Tremor and on a wide range of disability-related issues.

Visit our library to read Essential Tremor: The facts by Dr Mark Plumb and Dr Peter Bain. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org