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Facial palsy

Name	Facial Palsy
Related to/Also known as	Facial paralysis Bell's Palsy Stroke
Symptoms of Facial Palsy	"The term facial palsy generally refers to weakness of the facial muscles, mainly resulting from temporary or permanent damage to the facial nerve. "When a facial nerve is either non-functioning or missing, the muscles in the face do not receive the necessary signals in order to function properly. This results in paralysis of the affected part of the face, which can affect movement of the eye(s) and/or the mouth, as well as other areas." Source: Facial Palsy UK
Useful national contacts	Facial Palsy UK www.facialpalsy.org.uk Tel. 0300 030 9333 General enquiries: This email address is being protected from spambots. You need JavaScript enabled to view it.Support: This email address is being protected from spambots. You need JavaScript enabled to view it. Find your local support group: www.facialpalsy.org.uk/support/local-groups • The Cheshire & Mersey group meets at The Brain Charity Changing Faces: supports people who have any condition that affects their appearance www.changingfaces.org.uk Tel. 0300 012 0275 This email address is being protected from spambots. You need JavaScript enabled to view it.
Children & young people	Children with facial palsy (Facial Palsy UK) www.facialpalsy.org.uk/support/families-friends
Online resources	Facial palsy and coronavirus (Medical Advisory Board statement) (Facial Palsy UK) www.facialpalsy.org.uk/support/useful-info/facial-palsy-uks-response-to-coronavirus Facial Paralysis (MedlinePlus) https://tinyurl.com/y96xfcmr Facial palsy (Queen Victoria Hospital NHS Foundation Trust) https://tinyurl.com/yd73lvks Living with a condition (The Brain Charity)
Our resources	The library at the Brain Charity has a range of resources on Facial Palsy and on a wide range of disability related issues.

Familial Spastic Paraplegia (F.S.P.)

Name	Familial Spastic Paraplegia (FSP)
	see Hereditary Spastic Paraplegia

Fibromyalgia

Name	Fibromyalgia
Related to/Also known as	Myofascial pain syndrome
Symptoms of Fibromyalgia	Fibromyalgia means "pain coming from the muscles and fibrous tissues" (such as tendons and ligaments), and the condition is characterised by muscle aches and pains. Other symptoms often include fatigue, sleep disturbance and headache.
Types
Useful national contacts	Fibro Action UK (FMA UK) www.fmauk.org Helpline 0300 999 3333 Welfare Benefits helpliine 0300 999 0055 UK Fibromyalgia Tel. 01202 259155 www.ukfibromyalgia.com find your local support group: https://tinyurl.com/yany82ot Fibromates Northwest - Fibromyalgia Support Group now meets online on Facebook www.facebook.com/fibromates
Children & young people	Fibromyalgia in Children and Teens (WebMD) https://tinyurl.com/y37na7e9
Online resources	Corona Virus Information (FMA-UK) www.fmauk.org/latest-news-mainmenu-2/articles-1/55-medicalandtrials/1348-coronavirus NHS Choices: Fibromyalgia https://tinyurl.com/ya6jsvm7 NHS Choices video: Fibromyalgia: Suzanne's Story www.nhs.uk/video/pages/fibromyalgia.aspx Cochrane Evidence: Acupuncture for fibromyalgia https://tinyurl.com/ycl95eff Cochrane Evidence: Exercise for fibromyalgia https://tinyurl.com/y9oo52ed Centers for Disease Control and Prevention (U.S.): Fibromyalgia https://tinyurl.com/2br7hjl Living with a condition (The Brain Charity)
News and events	The University of Liverpool's Pain Research Institute is looking for volunteers for research into Fibromyalgia https://tinyurl.com/yy9b22ue
Our resources	The library at The Brain Charity has a range of resources on Fibromyalgia and on a wide range of disability-related issues. Visit our library to read Living with Fibromyalgia by Christine Craggs-Hinton. Or have a look in your local library for this book.

Fragile X Syndrome

Name	Fragile X Syndrome
Related to/Also known as	see also Autism
Symptoms of Fragile X Syndrome	"Fragile X is a genetic condition that affects both boys and girls, although boys are often more severely affected. "It can cause a range of issues with language, emotions, attention, behaviour and social interaction. ."Fragile X is the most common inherited cause of learning disability. "Of the people who have Fragile X, nearly all boys will have a learning disability but only a third of girls. The learning disability could be mild, moderate or severe, which will affect the amount of support the person needs day-to-day." Source: Mencap https://tinyurl.com/y4ysnrm8
Types
Useful national contacts	The Fragile X Society Tel: 01371 875 100 Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Website: www.fragilex.org.uk Mencap Helpline 0808 808 1111 www.mencap.org.uk
Children & young people	An Easy Read Guide to Fragile X Syndrome for Parents (Fragile X Society) https://tinyurl.com/yy9ktgp5 Preparing for adult life (Contact, charity for families with disabled children) https://contact.org.uk/advice-and-support/preparing-for-adult-life
News and events	Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020) https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Online resources	Easy-Read guide to Coronavirus from Mencap COVID-19: Supporting autistic people and people with learning disabilities (Social Care Institute for Excellence) Fragile X syndrome (Contact, charity for families with disabled children) https://tinyurl.com/yx4dc6zo Fragile X syndrome (Mencap) www.mencap.org.uk/learning-disability-explained/conditions-linked-learning-disability/fragile-x-syndrome Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Fibromyalgia and on a wide range of disability-related issues. Visit our library to read Understanding Fragile X Syndrome: A Guide for Families and Professionals by Isabel Fernández Carvajal. Or have a look in your local library for this book.

Fronto-temporal Dementia (F.T.D.)

Name	Fronto-temporal Dementia (FTD)
Related to/Also known as	includes: Behavioural Variant Frontotemporal Dementia (including Pick's Disease) Primary Progressive Aphasia Alcohol-Related Dementias
Symptoms of Fronto-temporal Dementia	Fronto-temporal dementias include Pick's Disease. These dementias commonly affect people of working age. The disease is difficult to diagnose because the sufferer is younger than expected, and displays different symptoms. Diagnosis takes up to three years.
Types
Useful national contacts	Frontotemporal Dementia Support Group Telephone: Jill Walton 07592 540555 Website: www.ftdsg.org
Children & young people	Explaining dementia to children and young people (Alzheimer's Society) https://tinyurl.com/y4bcceg4 Resources for Children and Young People (Dementia UK) www.dementiauk.org/children-and-young-people
News and events
Online resources	Coronavirus: Information for people affected by dementia (Alzheimer's Society) Coronavirus: Information for people affected by dementia Frontotemporal dementia - Diagnosis (NHS Choices) https://tinyurl.com/yd4sa8fd Alcohol and the brain (Alcohol Concern) www.alcoholconcern.org.uk/arbd Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Fronto-temporarl Dementia and on a wide range of disability-related issues. Visit our library to read our copy of the book What if it's not Alzheimer's? : a caregiver's guide to dementia by Gary Radin and Lisa Radin.

Functional Neurological Disorder

Name	Functional Neurological Disorder (F.N.D.)
Related to/Also known as	Functional Movement Disorders
Symptoms of Functional Neurological Disorder	"Approximately one-sixth of all patients seen by the neurology service will receive a diagnosis of functional neurological symptoms. This condition is also called 'medically unexplained neurological symptoms'. "This common condition covers a range of symptoms but most often people experience changes in their ability to move and feel their limbs. People may experience difficulty with walking, balance, problems controlling and moving arms and legs, and experience odd or unpleasant sensations in the body like tingling or pain. Symptoms may fluctuate or be there most of the time causing a lot of distress. "A good way to help understand functional neurological symptoms is to consider what happens when a computer breaks down. When a computer breaks down, it is usually due to a problem in the software (the programme that makes the computer work) and not the hardware (the computer chips and wires). Similarly, you can think of functional neurological symptoms as a problem where the hardware of your body (brain, spine and nerves) is not damaged, but the software of your body is not working as well as it should." Source: NHS Greater Glagow and Clyde
Types	Includes NEAD (Non-Epileptic Attack Disorder)
Useful national contacts	FND Action registered charity c/o Involve Kent, 39-48 Marsham Street Maidstone, Kent ME14 1HH www.fndaction.org.uk email This email address is being protected from spambots. You need JavaScript enabled to view it. Find your local support group: www.fndaction.org.uk/useful-links/# FND Hope UK registered charity, part of international FND Hope 21 Chetwode, Banbury, Oxon, OX16 1QN https://tinyurl.com/ux7a2xt
Children & young people	Pediatric functional neurologic symptoms (U.S. National Library of Medicine) https://tinyurl.com/swxtpoc
News and events
Online resources	Coronavirus Information (FND Action) www.fndaction.org.uk/coronavirus-information Functional Neurological Disorder (FND): a patient's guide https://tinyurl.com/y8xrlyzg Functional Neurological Disorders [includes'What are functional seizures?'], NHS Sheffield Teaching Hospitals website) https://tinyurl.com/y8vck5ey FND Magazine: online quarterly magazine of FND Hope https://tinyurl.com/y9pq4ecy Functional Neurological Disorder (Patient UK website) https://tinyurl.com/y4qdfpwu Functional Neurological Disorder (U.S. National Organization for Rare Disorders) https://rarediseases.org/rare-diseases/fnd Living with a condition (The Brain Charity)
Our resources	The library at The Brain Charity has a range of resources on Functional Neurological Disorder and on a wide range of disability-related issues. This includes copies of the FND Hope booklet 'Functional neurological disorder'.