Name  Facial Palsy
Related to/Also known as 

Facial paralysis

Bell's Palsy
Stroke
Symptoms of Facial Palsy

"The term facial palsy generally refers to weakness of the facial muscles, mainly resulting from temporary or permanent damage to the facial nerve.

"When a facial nerve is either non-functioning or missing, the muscles in the face do not receive the necessary signals in order to function properly. This results in paralysis of the affected part of the face, which can affect movement of the eye(s) and/or the mouth, as well as other areas."

Source: Facial Palsy UK

Useful national contacts Facial Palsy UK
Link opens in new window www.facialpalsy.org.uk
Tel. 0300 030 9333

General enquiries: This email address is being protected from spambots. You need JavaScript enabled to view it.Support: This email address is being protected from spambots. You need JavaScript enabled to view it.
Find your local support group: Link opens in new window www.facialpalsy.org.uk/support/local-groups
• The Cheshire & Mersey group meets at The Brain Charity

Changing Faces: supports people who have any condition that affects their appearance
Link opens in new window www.changingfaces.org.uk
Tel. 0300 012 0275
This email address is being protected from spambots. You need JavaScript enabled to view it.

Children & young people Children with facial palsy (Facial Palsy UK)
Link opens in new window www.facialpalsy.org.uk/support/families-friends
Online resources

Facial palsy and coronavirus (Medical Advisory Board statement) (Facial Palsy UK)
Link opens in new window www.facialpalsy.org.uk/support/useful-info/facial-palsy-uks-response-to-coronavirus

Facial Paralysis (MedlinePlus)
Link opens in new windowhttps://tinyurl.com/y96xfcmr

Facial palsy (Queen Victoria Hospital NHS Foundation Trust)
Link opens in new window https://tinyurl.com/yd73lvks

 Living with a condition (The Brain Charity)

Our resources

The library at the Brain Charity has a range of resources on Facial Palsy and on a wide range of disability related issues.

Name Fibromyalgia
Related to/Also known as Myofascial pain syndrome
Symptoms of Fibromyalgia
Fibromyalgia means "pain coming from the muscles and fibrous tissues" (such as tendons and ligaments), and the condition is characterised by muscle aches and pains. Other symptoms often include fatigue, sleep disturbance and headache.
Types  
Useful national contacts

Fibro Action UK (FMA UK)
Link opens in new window www.fmauk.org
Helpline 0300 999 3333
Welfare Benefits helpliine 0300 999 0055


UK Fibromyalgia
Tel. 01202 259155
Link opens in new window www.ukfibromyalgia.com
find your local support group:
Link opens in new window https://tinyurl.com/yany82ot

 

Fibromates Northwest - Fibromyalgia Support Group now meets online on Facebook
Link opens in new window www.facebook.com/fibromates

Children & young people Fibromyalgia in Children and Teens (WebMD)
Link opens in new window https://tinyurl.com/y37na7e9
Online resources Corona Virus Information (FMA-UK)
Link opens in new window www.fmauk.org/latest-news-mainmenu-2/articles-1/55-medicalandtrials/1348-coronavirus

NHS Choices: Fibromyalgia
Link opens in new window https://tinyurl.com/ya6jsvm7

NHS Choices video: Fibromyalgia: Suzanne's Story
Link opens in new window www.nhs.uk/video/pages/fibromyalgia.aspx
Cochrane Evidence: Acupuncture for fibromyalgia
Link opens in new window https://tinyurl.com/ycl95eff
Cochrane Evidence: Exercise for fibromyalgia
Link opens in new window https://tinyurl.com/y9oo52ed

Centers for Disease Control and Prevention (U.S.): Fibromyalgia
Link opens in new window https://tinyurl.com/2br7hjl

 Living with a condition (The Brain Charity)

News and events The University of Liverpool's Pain Research Institute is looking for volunteers for research into Fibromyalgia
Link opens in new window https://tinyurl.com/yy9b22ue
Our resources

Living with fibromyalgiaThe library at The Brain Charity has a range of resources on Fibromyalgia and on a wide range of disability-related issues.

Visit our library to read Living with Fibromyalgia by Christine Craggs-Hinton. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Fragile X Syndrome
Related to/Also known as  see also Autism
Symptoms of Fragile X Syndrome

"Fragile X is a genetic condition that affects both boys and girls, although boys are often more severely affected.

"It can cause a range of issues with language, emotions, attention, behaviour and social interaction.

."Fragile X is the most common inherited cause of learning disability.

"Of the people who have Fragile X, nearly all boys will have a learning disability but only a third of girls. The learning disability could be mild, moderate or severe, which will affect the amount of support the person needs day-to-day."

Source: Mencap
Link opens in new window https://tinyurl.com/y4ysnrm8

Types  
Useful national contacts The Fragile X Society
Tel: 01371 875 100
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: Link opens in new window www.fragilex.org.uk
Mencap
Helpline 0808 808 1111
Link opens in new window www.mencap.org.uk
Children & young people

An Easy Read Guide to Fragile X Syndrome for Parents (Fragile X Society)
Link opens in new window https://tinyurl.com/yy9ktgp5

 

Preparing for adult life (Contact, charity for families with disabled children)
Link opens in new window https://contact.org.uk/advice-and-support/preparing-for-adult-life

News and events Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)
Link opens in new window https://www.surveymonkey.co.uk/r/BPNA_JLA_RESEARCH_PSP
Online resources

Link opens in new window Easy-Read guide to Coronavirus from Mencap

Link opens in new window COVID-19: Supporting autistic people and people with learning disabilities (Social Care Institute for Excellence)

Fragile X syndrome (Contact, charity for families with disabled children)
Link opens in new window https://tinyurl.com/yx4dc6zo

Fragile X syndrome (Mencap)
Link opens in new window www.mencap.org.uk/learning-disability-explained/conditions-linked-learning-disability/fragile-x-syndrome

 Living with a condition (The Brain Charity)

Our resources

Understanding Fragile X Syndrome The library at The Brain Charity has a range of resources on Fibromyalgia and on a wide range of disability-related issues.

Visit our library to read Understanding Fragile X Syndrome: A Guide for Families and Professionals by Isabel Fernández Carvajal. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org

Name Fronto-temporal Dementia (FTD)
Related to/Also known as includes:
Behavioural Variant Frontotemporal Dementia (including Pick's Disease)
Primary Progressive Aphasia
Alcohol-Related Dementias
Symptoms of Fronto-temporal Dementia

Fronto-temporal dementias include Pick's Disease. These dementias commonly affect people of working age.

The disease is difficult to diagnose because the sufferer is younger than expected, and displays different symptoms. Diagnosis takes up to three years.

Types  
Useful national contacts Frontotemporal Dementia Support Group
Telephone:  Jill Walton 07592 540555
Website: Link opens in new window www.ftdsg.org
Children & young people 

Explaining dementia to children and young people (Alzheimer's Society)
Link opens in new window https://tinyurl.com/y4bcceg4

Resources for Children and Young People (Dementia UK)
Link opens in new window www.dementiauk.org/children-and-young-people

News and events  
Online resources

Coronavirus: Information for people affected by dementia (Alzheimer's Society)
Link opens in new window Coronavirus: Information for people affected by dementia

Frontotemporal dementia - Diagnosis (NHS Choices)
Link opens in new window https://tinyurl.com/yd4sa8fd

Alcohol and the brain (Alcohol Concern)
Link opens in new window www.alcoholconcern.org.uk/arbd

 Living with a condition (The Brain Charity)

Our resources What If It's Not Alzheimer's?: A caregiver's guide to dementia

The library at The Brain Charity has a range of resources on Fronto-temporarl Dementia and on a wide range of disability-related issues.

Visit our library to read our copy of the book What if it's not Alzheimer's? : a caregiver's guide to dementia by Gary Radin and Lisa Radin.

 

Name Functional Neurological Disorder (F.N.D.)
Related to/Also known as Functional Movement Disorders
Symptoms of Functional Neurological Disorder

"Approximately one-sixth of all patients seen by the neurology service will receive a diagnosis of functional neurological symptoms. This condition is also called 'medically unexplained neurological symptoms'.

"This common condition covers a range of symptoms but most often people experience changes in their ability to move and feel their limbs. People may experience difficulty with walking, balance, problems controlling and moving arms and legs, and experience odd or unpleasant sensations in the body like tingling or pain. Symptoms may fluctuate or be there most of the time causing a lot of distress.

"A good way to help understand functional neurological symptoms is to consider what happens when a computer breaks down. When a computer breaks down, it is usually due to a problem in the software (the programme that makes the computer work) and not the hardware (the computer chips and wires). Similarly, you can think of functional neurological symptoms as a problem where the hardware of your body (brain, spine and nerves) is not damaged, but the software of your body is not working as well as it should."

Source: Link opens in new window NHS Greater Glagow and Clyde

Types Includes NEAD (Non-Epileptic Attack Disorder)
Useful national contacts

FND Action
registered charity
c/o Involve Kent, 39-48 Marsham Street
Maidstone, Kent ME14 1HH
Link opens in new window www.fndaction.org.uk
email This email address is being protected from spambots. You need JavaScript enabled to view it.
Find your local support group: Link opens in new window www.fndaction.org.uk/useful-links/#


FND Hope UK
registered charity, part of international FND Hope
21 Chetwode, Banbury, Oxon, OX16 1QN
Link opens in new window https://tinyurl.com/ux7a2xt

Children & young people Pediatric functional neurologic symptoms (U.S. National Library of Medicine)
Link opens in new window https://tinyurl.com/swxtpoc
News and events   
Online resources

Coronavirus Information (FND Action)
Link opens in new window www.fndaction.org.uk/coronavirus-information

Functional Neurological Disorder (FND):  a patient's guide
Link opens in new window https://tinyurl.com/y8xrlyzg

Functional Neurological Disorders [includes'What are functional seizures?'], NHS Sheffield Teaching Hospitals website)
Link opens in new window https://tinyurl.com/y8vck5ey

f.n.d. magazine FND Magazine: online quarterly magazine of FND Hope
Link opens in new window https://tinyurl.com/y9pq4ecy

Functional Neurological Disorder (Patient UK website)
Link opens in new window https://tinyurl.com/y4qdfpwu

Functional Neurological Disorder (U.S. National Organization for Rare Disorders)
Link opens in new window https://rarediseases.org/rare-diseases/fnd

 Living with a condition (The Brain Charity)

Our resources F.N.D. Hope booklets

The library at The Brain Charity has a range of resources on Functional Neurological Disorder and on a wide range of disability-related issues.

This includes copies of the FND Hope booklet 'Functional neurological disorder'.