|Name||Idiopathic Intracranial Hypertension (IIH)|
|Related to/Also known as||Benign Intracranial Hypertension (BIH)
Pseudotumor Cerebri (PTC)
|Symptoms of I.I.H.||
Idiopathic Intracranial Hypertension (I.I.H.) is a condition that is defined by increased intracranial pressure from increased blood flow to the blood vessels around the brain, but without the presence of tumour or disease. Often the sheath around the optic nerve (the nerve to the eyes) is swollen, which can cause sight problems and even blindness.
It is also known as Pseudotumor Cerebri (PTC), because some sufferers present with signs and symptoms of a brain tumour despite no tumour being present ('pseudo' meaning false).
|Useful national contacts||IIH UK
64a Broadsands Drive
Hants. PO12 2SD
Find support near you: https://tinyurl.com/y9pmj574
I Have IIH Foundation
Blind Children UK
Support Line: 0800 781 1444
|Online resources||IIH UK Patient Leaflet
IIH International Support Forum
Idiopathic Intercranial Hypertension (NHS Choices)
The library at The Brain Charity has a range of resources on Idiopathic Intracranial Hypertension and on a wide range of disability-related issues.
This includes a copy of the Journal of Neurology, Neurosurgery and Psychiatry article "Idiopathic Intracranial Hypertension: Consensus guidelines on management".