Name | Locked-in Syndrome |
Related to/Also known as |
Cerebromedullospinal disconnection |
Symptoms of Locked-in Syndrome |
"Locked-in syndrome is a rare condition where someone is completely paralysed in all parts of their body, apart from the muscles that control eye movement. It can happen because of a number of different conditions such as traumatic brain injury, diseases of the circulatory system and stroke." Source: Stroke Association https://tinyurl.com/y396u656
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Useful national contacts |
Stroke Association
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Children & young people | "Parents of world's youngest locked-in syndrome sufferer, nine, reveal heartache over daughter who blinks to communicate" (Daily Mail, August 2012)![]() |
Online resources |
Coronavirus (COVID-19) and stroke (Stroke Association) Locked-In Syndrome Information Page (U.S. National Institute for Neurological Disorders and Stroke) Locked In Syndrome (U.S. National Organization for Rare Disorders) |
News and events |
Completely 'locked-in' patients can communicate (BBC website, February 2017) Locked-in syndrome: rare survivor Richard Marsh recounts his ordeal (The Guardian newspaper website, August 2012) |
Our resources |
Visit our library to read our copy of the book Running Free: Breaking out from locked-in syndrome . |