M
Name Multiple Sclerosis (MS)
Related to/Also known as  
Symptoms of MS

Multiple Sclerosis is the most common disabling neurological disorder affecting young adults. MS occurs as the result of damage to myelin - the protective sheath surrounding nerve fibres of the central nervous system. This damage interferes with messages between the brain and other parts of the body.

• The British Deaf Association has information in BSL about Multiple Sclerosis

Types
  • Relapsing remitting MS
  • Secondary progressive MS
  • Primary progressive MS
Useful national contacts MS Society
Helpline: 0808 800 8000
Link opens in new window www.mssociety.org.uk
Find your local support group:
Link opens in new window https://tinyurl.com/y8ksdy2j

MS Legal Line – 0207 791 9800 option 2. This goes through to Disability Law Service who they work with. They will help advise/support with tribunals. Also help with any employment legal issues.


Multiple Sclerosis Trust
Tel. 01462 476700
Freephone information service 0800 032 3839

Link opens in new window www.mstrust.org.uk


MS-UK
Tel. 0800 783 0518
Link opens in new window www.ms-uk.org
You can call the MS-UK Helpline for free on 0800 783 0518 during weekdays, between 9 a.m. and 5 p.m.


Multiple Sclerosis National Therapy Centres
There are more than 50 centres in Britain and Ireland, including the Neuro Therapy Centre in Cheshire.
Link opens in new window www.msntc.org.uk and
Link opens in new window www.neurotherapycentre.org


CSF Leak Association
Charity working to raise the profile and support understanding of cerebrospinal fluid (CSF) leaks, and provides support to sufferers and carers.
Link opens in new window www.csfleak.info

Children & young people Young people and MS (MS Trust)
Link opens in new window www.mstrust.org.uk/life-ms/young-people-and-ms
Young people's guide to MS (MS Trust)
Link opens in new window https://tinyurl.com/vgzybdk

Multiple sclerosis (Great Ormond Street Hospital)
Link opens in new window https://tinyurl.com/y228ndj6
Online resources

Coronavirus, Covid-19 and multiple sclerosis (MS Trust)
Link opens in new window www.mstrust.org.uk/a-z/coronavirus-covid-19-and-multiple-sclerosis#will-i-receive-a-letter-from-the-nhs-telling-me-to-shield

COVID-19 coronavirus and MS (MS Society)
Link opens in new window COVID-19 coronavirus and MS


MS Trust: Newly diagnosed with Multiple Sclerosis
Link opens in new window https://tinyurl.com/ybow2j8r


Physiotherapy works: Multiple Sclerosis (MS) (Chartered Society of Physiotherapists factsheet)
Link opens in new window https://tinyurl.com/ya73x7n9
Applying for PIP (MS Society)
Link opens in new window https://tinyurl.com/y4ounms2

MS-UK Live Webchat
Link opens in new window www.ms-uk.org/livewebchat


NHS Choices: Multiple Sclerosis
Link opens in new window https://tinyurl.com/ybdgn4uq


NHS Videos: Being diagnosed with multiple sclerosis
Link opens in new window https://tinyurl.com/y7tqpqbv


BBC: What is multiple sclerosis?
Link opens in new window http://www.bbc.co.uk/newsbeat/18490516


MS-UK video
Link opens in new window www.youtube.com/watch?v=IWdXloSD8gs


MS Research Treatment and Education charity
Link opens in new window www.ms-research.org.uk


MS Register
A ground-breaking study designed to increase our understanding of living with MS in the UK
Link opens in new window www.ukmsregister.org

Trigeminal Neuralgia (NORD, U.S. National Organization for Rare Disorders)
Includes details of TN2, 'atypical' or 'symptomatic' Trigeminal Neuralgia
Link opens in new window https://tinyurl.com/y28z9njm

Tumefactive multiple sclerosis (U.S. Genetic and Rare Diseases Information Center)
Link opens in new window https://tinyurl.com/yyz2gxbl


Legal status of cannabis (MS Trust, October 2018)
Link opens in new window https://tinyurl.com/y5fmgm5g
 Living with a condition (The Brain Charity)

News and events

'Medical cannabis now available on NHS' (MS-UK, November 2019)
Link opens in new window http://tinyurl.com/yghdgsfc

'Game changer' treatment for Multiple Sclerosis patients (BBC, March 2018)
Link opens in new window https://tinyurl.com/y79vp8ya

Emerging areas of research: Stem cells (MS Society)
Link opens in new window https://tinyurl.com/y7fktbav

Our resources

Annie & Dan talk about M.S.: a D.V.D. for children under 10The library at The Brain Charity has a range of resources on MS and on a wide range of disability-related issues.

Visit our library to borrow Annie & Dan talk about MS : a DVD for children under 10