Name Myalgic Encephalomyelitis (ME)
Related to/Also known as Chronic Fatigue Syndrome (CFS)

Post-Viral Fatigue Syndrome (PVFS)

Symptoms of M.E.
M.E. is a potentially chronic and disabling neurological disorder, which is characterised by persistent fatigue and muscle pain. Symptoms can include cognitive problems such as loss of memory and concentration, recurrent sore throat and enlarged neck glands, disturbed sleep patterns and persistent headaches.
Useful national contacts ACTION for M.E.
Telephone support: 0845 123 2314
Membership/general 0845 123 2380, 9am-5pm
Link opens in new window www.actionforme.org.uk
Find your local support group:
Link opens in new window www.actionforme.org.uk/find-local-services/

M.E. Association
Helpline: 0844 576 5326 (open every day 10am-12noon, 2-4pm, 7-9pm)
Link opens in new window www.meassociation.org.uk

Children & young people

Association of Young People with ME
(support and advice for young people aged from 5-26 and their families)
Helpline 0845 123 2389, 10am-2pm
Link opens in new window www.ayme.org.uk

Children and Adolescents, The NICE Guideline on ME/CFS (M.E. Association)
Link opens in new window https://tinyurl.com/yxp36efz

Online resources

Chronic fatigue syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/yblzrncb

News and events

'Landmark chronic fatigue trial could treat two-thirds' (BBC website, November 2016)
Link opens in new window www.bbc.co.uk/news/health-3782206

'Testing online treatment for chronic fatigue syndrome (CFS/ME)' (AYME website, November 2016)
Link opens in new window http://tinyurl.com/jddsypo
Our resources

Living with M.E.: The Chronic/Post-Viral Fatigue Syndrome The library at The Brain Charity has a range of resources on M.E. and on a wide range of disability-related issues.

Visit our library to read Living with M.E: The chronic/post-viral fatigue syndrome by Dr Charles Shepherd. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org