Neurofibromatosis

Neurofibromatosis Type 1 (Nf1) is the most common type, causing tumours (non-malignant and bumps) to form on nerve endings anywhere in the body. Other effects can include learning difficulties, social problems and epilepsy.

Neurofibromatosis Type 2 (Nf2) is a much rarer disorder of the nerve tissue, resulting in acoustic neuromas or vestibular Schwannomas on the nerve that takes messages from the ear to the brain. This can then result in progressive deafness and communication problems.

Childhood Tumour Trust
Charity supporting children and young people with Neurofibromatosis Type 1
www.childhoodtumourtrust.org.uk

Neurofibromatosis support downloads (Nerve Tumours UK)
Information for children and young people, and for parents and teachers
https://tinyurl.com/y2p7mlkg

The Brain Changer Arts Project (The Brain Charity)

Easy-Read guide to Coronavirus from Mencap

Neurofibromatosis& COVID-19 (Coronavrus) (Nerve Tumors UK)
https://nervetumours.org.uk/help/neurofibromatosis-covid-19-coronavirus

Neurofibromatosis type 1 (NHS Choices)
https://tinyurl.com/y7f5e9av

Neurofibromatosis type 2 (NHS Choices)
https://tinyurl.com/y7tukxx5

Neurofibromatosis Information Page (U.S. National Institute of Neurological Disorders and Stroke)
https://tinyurl.com/y78qsyn4

Living with a condition

The library at The Brain Charity has a range of resources on Neurofibromatosis and on a wide range of disability-related issues.

This includes copies of the Neurofibromatosis Association's booklets for children "Polly's Best Friend: A Booklet for Girls under 10" and "The Winning Goal: A Booklet for Boys under 10".