Name | Stiff-Person Syndrome (SPS) |
Related to/Also known as |
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Symptoms of Stiff-Person Syndrome |
Source: Johns Hopkins Medecine (U.S.)
Source: Genetic Alliance UK |
Types |
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Useful national contacts | SPS Support Group (Stiff Person Syndrome UK and Ireland Support Group and Charity) Tel: 01482 868881 Email: This email address is being protected from spambots. You need JavaScript enabled to view it. ![]() |
Children & young people | "Reports of pediatric-onset stiff-man syndrome (SMS) are rare. This may be an underrecognized disorder in child neurology practice." (U.S. National Center for Biotechnolocgy Information)![]() |
News and Events | "Diagnosed with stiff person syndrome" (Sharing Mayo Clinic News, April 2019)![]() |
Online resources |
Coronavirus - information for people with neurological problems (Brain & Spine Foundation) Stiff Person Syndrome (NORD, U.S. National Organization for Rare Disorders) Stiff person syndrome (U.S. Genetic and Rare Diseases Information Center) Stiff-Person Syndrome (U.S. National Institute for Neurological Disorders and Stroke)
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Our resources |
The library at the Brain Charity has a range of resources on a wide range of disability related issues. |