“I felt a real sense of loss for the life I had when I was first diagnosed”
Dystonia means that Sarah can’t work anymore doing the job she loved as a children's special educational needs coordinator.
Sarah first started to exhibit symptoms three years ago and it took two years to get a diagnosis, the condition means she can no longer drive or join in the social activities she once enjoyed. She’s lost touch with many of her friends and before coming to The Brain Charity she was feeling very isolated. She hardly left the house as she was scared of people staring at her and judging her for the way she walked and moved. Naturally enough, this drastic change in lifestyle was difficult for her to adjust to.
It took nearly a year for Sarah to pluck up the courage to drop into the charity after first hearing about us as she didn’t really know what the centre was all about. She had thought our services might be aimed at older people and was delighted to find such a range of ages when she visited us.
She spoke with our team members Carolyn and Janet who both encouraged her to come along to craft club as it was a nice small group to start with. From there Sarah’s confidence has continued to improve and she joins in art class and now even runs Boccia classes as a volunteer.
“Coming here has given me the chance to try new things. I never knew I had a talent for art until I joined the art class!”
“There’s lots of things I can’t do anymore but The Brain Charity has freed me from staring at four walls”