News

A new neurological patient experience survey is open, to collect vital information about the experiences of treatment and care, social care and welfare received by people affected by neurological conditions in England. The survey aims to collect enough data to positively influence future neurology services.

About the survey

The survey is by The Neurological Alliance – an organisation that brings together organisations, including The Brain Charity, which are working to make life better for millions of people in England with a neurological condition.

Through the patient experience survey, we aim to positively influence the future quality of neuro health and social care services. Too often services fall below the standard expected. This survey aims to help change that.

The Brain Charity fully supports the Neurological Alliance in its ambitions. We welcome the survey as an important tool in gathering shared insights across neurological conditions. The neurology community is strong when it stands together.

What will happen with the results?

The Neurological Alliance will publish the results in a report in summer 2019. This report will set out a comprehensive picture of what is happening in relation to neurological services and make recommendations about how care can be improved.

The survey findings will be shared with The Brain Charity and we will use the results to inform our campaigning.

The Neurological Alliance’s previous two patient experience surveys made a significant impact:

  • They made the case for continued national leadership for neurology which led to the National Neuro Advisory Group being set up.
  • Got the National Neuro Advisory Group to prioritise care planning and communication with patients. Fed into NHS long term plan
  • Developed a programme of work on mental health and neurology, report published.
  • Influenced the development of NICE guidance on suspected neurological conditions.
  • Raised the profile of neurology through media work.

How do I complete the survey?

The survey is open from 17th October 2018 to 17th January 2019. It is for anyone with a neurological condition living in England. Carers can help complete the survey as needed.

The survey may take around 25 minutes to complete. Please be aware that you cannot save your answers and come back later. Your responses are completely confidential and anonymous.

Please click here to complete the neurological patient experience survey.

Thank you – each response makes a difference.