Laura was diagnosed with Fibromyalgia five years ago; she’s also recently been diagnosed with Functional Neurological Disorder (FND) as well as non epileptic seizures. Laura attends our craft, computer and photography classes along with her wife Debbie and they both enjoy coming along to our monthly coffee mornings.
"My speech is often slurred and I have foreign language syndrome which means I sometimes speak with a foreign accent; it’s very unpredictable and can be embarrassing when I’m out and about or in social situations. I stopped going out because I was worried about what people would think of me, so being able to come to a safe environment where everyone understands and doesn’t judge me has been a real life line and helped me to live my life again."
Laura heard about The Brain Charity through one of our volunteers and started off by coming along to one of our coffee mornings to find out what we had to offer. She signed up to come along to some of our classes and activities and is now very much at home and feels that her confidence has improved since she’s been coming into the charity.
"I’m in constant pain and the FND affects my mobility, but I feel ‘normal’ when I’m here as everyone is in the same boat and I can just be myself. I feel accepted for who I am and don’t worry what anyone thinks about me."
Laura finds it difficult to travel anywhere by herself as it takes a lot of planning and she needs assistance, but she’s happy to be dropped off at the Charity to take part in activities if Debbie can’t come with her as she knows that there are people here to help if she gets into difficulties and that they care about her welfare.
"I’ve made some really good friends at The Brain Charity and me and Debbie have started coming to social events as well. We feel part of the family here and I really look forward to coming in each week."
If you’re feeling that you’d like to get out and about a bit more why don’t you come along to one of our coffee mornings and find out what we have going on? It’s a great way to meet others who have neurological conditions and find out how friendly and welcoming everyone is.
Alternatively have a look at the events calendar on our website, or call us up on 0800 008 6417 and have a chat with our information team who can tell you about what activities are coming up.