Lyme disease

Borreliosis, Borrelia burgdorferi, Borrelia mayonii, Borrelia burgdorferi infection

What is Lyme disease?

Lyme disease is a bacterial infection which is caused by an infected tick bite.

What causes Lyme disease?

Ticks can be found all around the UK but not all of them are infected. The ticks that can cause infection are usually found in grassy woodland areas.

What are the symptoms of Lyme disease?

Lyme disease can be easier to  treat if diagnosed early. Within a month of being bitten, a rash appears which can last for a few weeks. The rash can first appear like a circular bruise which may then get bigger.

Some people also experience flu like-symptoms including:

  • High temperature
  • Headache
  • Muscle and joint pain
  • Loss of energy

If treatment is delayed, symptoms can get worse, and these can include:

  • Joint pain and swelling
  • Heart problems
  • Nerve pain
  • Memory loss

In some cases, symptoms can last for years.

Are you affected by Lyme disease?

If you’re affected by Lyme disease, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with Lyme disease, emotional support such as counselling, phone befriending and group therapy and social activities to people with Lyme disease from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone affected by Lyme disease

We support carers, friends and family too

Are you a carer for or relative of someone with Lyme disease? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Lyme disease, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

The Brain Charity's library

The Brain Charity's library has various resources related to Lyme disease, and on a wide-range of other disability-related issues.

Support groups

Lyme Disease UK (LDUK) local support groups

Find Lyme Disease UK local support groups here: lymediseaseuk.com/local-support

Support groups at The Brain Charity

Are you interested in setting up a Lyme disease support group, or do you already run one? Email info@thebraincharity.org.uk to let us know.

Alternatively, you can check out our list of related support groups here.

Other charities

Lyme Disease UK (LDUK)

Lyme Disease UK campaigns for increased awareness of Lyme disease and supports those experiencing the illness.

Website: lymediseaseuk.com

Email: support@lymediseaseuk.com or admin@lymediseaseuk.com

Lyme Aid UK

LymeAid UK provides grants to people on low incomes who suspect they have Lyme Borreliosis for private overseas testing for the disease.

Website: lymeaiduk.com

Email: info@lymeaiduk.com

Caudwell LymeCo Charity 

Cauldwell LymeCo funds research to find an accurate diagnostic test for Lyme disease and a treatment that cures patients at all stages.

Website: caudwelllyme.com

Email: Contact form

Lyme Disease Action

Lyme Disease Action raises awareness and funds scientific and medical research and education into the condition.

Website: www.lymediseaseaction.org.uk

Email: other@lymediseaseaction.org.uk

The Global National Healthcare Trust UK (GNHCT UK)

GNHCTUK provides clinic care, a day centre, natural prescriptions and herbal clinic consultations for people with Lyme disease.

Website: www.gnhct-uk.com

Email: info@gnhct-uk.com

Tel: UK Helpline – 0737 635 9929 Monday to Friday 10am to 5pm

Lyme Resource Centre

Lyme Resource Centre is a Scottish charity aiming to educate the public and healthcare professionals.

Website: www.lymeresourcecentre.com

Email: Contact form