Alice in Wonderland syndrome

AIWS, Todd syndrome, migraine aura, Lilliputian hallucinations

What is Alice in Wonderland syndrome?

Alice in Wonderland syndrome is a rare disorder that changes how the brain perceives things.

What causes Alice in Wonderland syndrome?

It’s not clear what causes AIWS, but people who have migraines or epilepsy are more likely to experience the syndrome.

What are the symptoms of Alice in Wonderland syndrome?

Symptoms of AIWS include:

– objects appear too small or too big
– objects appear too close or too far away
– distorted body image
– loss of limb control

Are you affected by Alice in Wonderland syndrome?

If you’re affected by Alice in Wonderland syndrome, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Together, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with Alice in Wonderland syndrome, emotional support such as counselling, phone befriending and group therapy and social activities to people with Alice in Wonderland syndrome from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0800 008 6417

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Caring for someone affected by Alice in Wonderland syndrome

The symptoms of AIWS may be distressing, but it is important to remember that they are not harmful. If the person affected experiences migraines, treating these may help.

We support carers, friends and family too

Are you a carer for or relative of someone with Alice in Wonderland syndrome? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Alice in Wonderland syndrome, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

Resources in our library

The library at the Brain Charity has a range of resources on Alice in Wonderland syndrome (AIWS) and on a wide range of disability related issues.

Visit our library to read Alice In Wonderland syndrome.

Support groups

Alice in Wonderland syndrome Facebook support group

Other charities

The Migraine Trust (Migraine Action has merged with the Migraine Trust)

Tel: 020 7631 6970
www.migrainetrust.org