Chronic fatigue syndrome

CFS, myalgic encephalomyelitis (ME), post-viral fatigue syndrome (PVFS), systemic exertion intolerance disease (SEID)

What is chronic fatigue syndrome?

CFS is a long-term condition, characterised by extreme tiredness.

What causes CFS?

While CFS can affect anyone, it is more common in women aged 20-40. It is not known what causes CFS, but it may be triggered by an infection.

What are the symptoms of chronic fatigue syndrome?

Symptoms of CFS can include:

– feeling extremely tired
– disturbed sleep patterns
– muscle or joint pain
– headaches
– feeling dizzy

The symptoms of CFS are similar to many other conditions. Therefore, it is important to consult your GP for a diagnosis.

Are you affected by Chronic fatigue syndrome?

If you’re affected by CFS, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with chronic fatigue syndrome, emotional support such as counselling, phone befriending and group therapy and social activities to people with chronic fatigue syndrome from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0800 008 6417

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Caring for someone affected by Chronic fatigue syndrome

Living with chronic fatigue syndrome can be hard. The symptoms often make it difficult to carry out day-to-day tasks. For this reason, those experiencing CFS need reliable emotional support from friends and family.

We support carers, friends and family too

Are you a carer for or relative of someone with chronic fatigue syndrome? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including CFS, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

The Brain Charity's library

The library at The Brain Charity has a range of resources on this condition and on a wide range of disability-related issues.

Support groups

Other charities

ACTION for M.E. (charity working to improve understanding of the illness and, one day, have effective treatment)

Tel: 0845 123 2314
Website: www.actionforme.org.uk

M.E. Association (medical charity supporting people with ME/CFS through all stages of their illness)

Helpline: 0844 576 5326
Website: www.meassociation.org.uk