Anencephaly

What is Anencephaly?

Anencephaly is a fatal condition that affects the neural tube, which is the structure that develops into a baby’s brain and spine. As a result, an affected baby’s brain does not form properly in the womb. Sadly, most babies with the condition pass away before, during or soon after birth.

What causes Anencephaly?

The exact cause of anencephaly is unknown but there are certain factors that can increase the risk of the condition developing such as:

  • Genetics.
  • Diabetes.
  • Low levels of folate/B12.

Are you affected by anencephaly?

If you’re affected by anencephaly, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with encephalitis, emotional support such as counselling, phone befriending and group therapy and social activities to people with encephalitis from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with anencephaly

We support carers, friends and family too

Are you a carer for or relative of someone with anencephaly? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including encephalitis, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Carer support from The Brain Charity in Liverpool Practical help

Support for carers

All The Brain Charity's services are free for carers and family members of people with neurological conditions too.
Get help
A young woman with Brain Charity lanyard shows an older man a leaflet - Information and advice services at The Brain Charity Practical help

Dealing with a new diagnosis

We can help you come to terms with a new diagnosis, practically and emotionally.
Get help
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Other resources

Support groups

The Shine Family

 Free membership that provides help, advice and support for those whose pregnancy has been affected or those who have lost a baby to the condition.

Website: https://www.shinecharity.org.uk/become-a-member

Phone: 01733555988

Email: info@shinecharity.org.uk

 

Other charities

Shine

Website: https://www.shinecharity.org.uk/