Raynaud’s syndrome

Raynaud’s disease

What is Raynaud’s syndrome?

Raynaud’s syndrome affects one’s blood circulation in response to cold temperatures and anxiety.

Peripheral blood vessels narrow, causing numbness, colour change, and soreness in some areas of the body, such as fingers and toes.

What causes Raynaud’s?

When temperatures drop, our body tries to limit heat loss by vasoconstriction of the peripheral blood vessels.

In Raynaud’s syndrome, these blood vessels are oversensitive to the cold temperatures and become more narrow than normal, making the fingers and toes feel numb and look blue.

It is estimated that one in 10 people have some type of Raynaud’s; however, women and people aged between 15-25 are more at risk for experiencing this phenomenon.

Symptoms of Raynaud’s syndrome

  •     Fingers and/or toes first turn pale in response to cold temperatures or stress and then turn blue
  •     Fingers and/or toes turn red and become swollen when the circulation improves
  •     Gangrene might develop on the fingers and/or toes (rare cases)
  •     Nose, lips, ears, and nipples are sometimes affected too.

Are you affected by Raynaud’s syndrome?

If you’re affected by Raynaud’s, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with Raynaud’s, emotional support such as counselling, phone befriending and group therapy and social activities to people with Raynaud’s from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with Raynaud’s syndrome

We support carers, friends and family too

Are you a carer for or relative of someone with Raynaud’s syndrome? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Raynaud’s, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

The Brain Charity’s Library

The Brain Charity’s library has a range of resources on many disability-related issues.

Support groups:

Support groups at The Brain Charity

Are you interested in setting up a Raynaud’s support group, or do you already run one? Email activities@thebraincharity.org.uk to let us know.

Alternatively, you can check out our list of related support groups here.

Other charities

Raynaud’s Association

SRUK - Scleroderma & Raynaud’s UK

Website: www.sruk.co.uk

Phone: 0800 311 2756 (Helpline open 365 days a year, 9am to 7pm)

Email: info@sruk.co.uk