Name  Dysautonomia
Related to/Also known as
  • Riley-Day syndrome
  • HSAN Type III
  • Autoimmune Autonomic Ganglionopathy
Symptoms of Dysautonomia

"Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the "automatic" functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control.

"Dysautonomia can also occur secondary to other medical conditions, such as diabetes, multiple sclerosis, rheumatoid arthritis, celiac [coeliac], Sjogren's syndrome, lupus, and Parkinson's."

Source: Dysautonomia International

Types Includes:
  • Diabetic Autonomic Neuropathy (DAN)
  • Familial dysautonomia
  • Generalized dysautonomia
  • Multiple System Atrophy
  • Postural tachycardia syndrome (PoTS)
Useful national contacts

Jnetics (formally Jewish Genetic Disorders UK)
Link opens in new window www.jnetics.org
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

UK Potsies
Link opens in new window www.ukpotsies.org.uk

Dysautonomia International
Link opens in new window www.dysautonomiainternational.org

Childen & young people

Living a Life With Dysautonomia in Children (Dysautonomia POTS Syndrome website)
Link opens in new window https://tinyurl.com/y3ua6jps

Brain injury - Dysautonomia (Kids Health Info, Royal Children's Hospital Melbourne)
Link opens in new window https://tinyurl.com/y4rrvdul

News and events "Camilla sees benefits of medical alert dogs on charity visit" (Wolverhampton Express and Star, February 20, 2019)
Link opens in new window https://tinyurl.com/y5h6su29
Online resources

Coronavirus & Dysautonomia (Dysautonomia International)
Link opens in new window www.dysautonomiainternational.org/page.php?ID=227

Coronavirus and diabetes (Diabetes UK)
Link opens in new window www.diabetes.org.uk/about_us/news/coronavirus?utm_source=google%2C%20covid-19&utm_medium=Banner&utm_campaign=banner_covid-19&utm_content=banner_link

Familial Dysautonomia (Contact, charity for familiies with disabled children)
Link opens in new window https://tinyurl.com/sgy9sbh

Autonomic Neuropathy (Diabetes.co.uk)
Link opens in new window http://tinyurl.com/y4hy3g4k

Coronavirus vaccines and diabetes (Diabetes UK)
Link opens in new window www.diabetes.org.uk/about_us/news/coronavirus-vaccines

Postural tachycardia syndrome (PoTS) (NHS website)
Link opens in new window https://tinyurl.com/ycxju2b9

Dysautonomia Information Page (U.S. National Institute of Neurological Disorders and Stroke)
Link opens in new window http://tinyurl.com/y499zwts

Dysautonomia, Familial (U.S. National Organization for Rare Disorders)
Link opens in new window http://tinyurl.com/yyuajgvm

 Living with a condition (The Brain Charity)

Our resources

The library at the Brain Charity has a range of resources on Dysautonomia and on a wide range of disability-related issues.