Tarlov cysts

Perineural cysts, sacral cysts, meningeal cysts, sacral nerve root cysts.

What are Tarlov cysts?

Tarlov cysts are fluid-filled sacs that form on nerve roots at the base of the spine. The sacs are filled with cerebrospinal fluid (CSF), which is the fluid that surrounds our brain and spinal cord.

They are often harmless, but some larger cysts can affect nearby nerves.

Tarlov cysts are rare and are often missed, especially when they don’t cause symptoms. Although cysts don’t disappear on their own, many cases won’t require treatment or monitoring.

What causes Tarlov cysts?

The exact cause isn’t fully understood, but it may be linked to:

  • Weakness in the nerve’s protective layer
  • Injury to the spine
  • Increased pressure in CSF

The chance of having a cyst may be higher if you have had a previous injury or surgery to the spine or have a connective tissue disorder.

What are the symptoms of Tarlov cysts?

Most Tarlov cysts cause no symptoms. They are usually diagnosed using an MRI scan, with many people not realising they have a cyst until it is found on imaging.

When symptoms do occur, they can vary depending on where the cyst is and the amount of pressure they cause.

Symptoms can include:

  • Lower back or pelvic pain
  • Sciatica or nerve pain down the legs
  • Numbness or tingling in the legs or feet
  • Bladder or bowel issues
  • Sexual dysfunction

Symptoms can be more noticeable after an injury, or long periods of sitting or standing.

If you are experiencing symptoms, support such as pain management and physiotherapy may help manage your condition.

Are you affected by Tarlov cysts?

If you’re affected by Tarlov cysts The Brain Charity can support you.

We are the only charity in the UK to be here for every one of more than 600 different neurological conditions in existence. Individually, many are rare, but combined they affect 1 in 6 people.

We provide practical help on all aspects of living with Tarlov cysts, emotional support such as counselling, group therapy and social activities to people with Tarlov cysts from all over the UK from our centre in Liverpool.

Looking to talk to someone?

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Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with Tarlov cysts

We support carers, friends and family too

Are you a carer or relative of someone with Tarlov cysts? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Tarlov cysts, from anywhere in the UK. We also run additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance.
Find out some of the ways we support carers below.

Other resources

Support groups

Tarlov cysts UK Support Group

Join this Facebook community for advice and support from others living with Tarlov cysts.

Support groups at The Brain Charity

Are you interested in setting up a Tarlov cyst support group, or do you already run one?

Email activities@thebraincharity.org.uk to let us know.

Alternatively, you can check out our list of related support groups here.

Other charities