Reye’s syndrome

Reye-Johnson syndrome, Reye's-like syndrome

What is Reye’s syndrome?

Reye’s syndrome is a rare condition that affects the brain and liver. It often develops in young children after they’ve had a viral illness like flu or chickenpox. Symptoms typically appear 1 to 3 weeks after recovery and can progress rapidly.

Reye’s syndrome is a medical emergency, recognising symptoms quickly can help improve a child’s recovery.

The condition mostly affects children aged 5 to 14 years, but it can also happen in younger children and adults.

What causes Reye’s syndrome?

The exact cause of Reye’s syndrome is unknown, but it has been linked to the use of aspirin in treating viral infections in children. Because of this, aspirin is not recommended for children under 16 unless advised by a doctor.

Other possible causes include:

  • Viral infections
  • Some inherited metabolic conditions
  • Certain medications

Reye’s syndrome is now very rare thanks to increased awareness of aspirin use in children.

What are the symptoms of Reye’s syndrome?

Symptoms often develop quickly and may include:

  • Persistent vomiting that doesn’t improve
  • Unusual drowsiness or low energy
  • Confusion
  • Changes in behaviour
  • Changes in breathing or heart rate
  • Seizures
  • Loss of consciousness

Because Reye’s syndrome can worsen quickly, recognising the early signs and seeking medical help as soon as possible is important.

If your child has recently had a viral illness and develops persistent vomiting alongside confusion or unusual behaviour, contact a doctor without delay.

Are you affected by Reye's syndrome?

If you’re affected by Reye’s syndrome The Brain Charity can support you.

We are the only charity in the UK to be here for every one of more than 600 different neurological conditions in existence. Individually, many are rare, but combined they affect 1 in 6 people.

We provide practical help on all aspects of living with Reye’s syndrome, emotional support such as counselling, group therapy and social activities to people with Reye’s syndrome from all over the UK from our centre in Liverpool.

Looking to talk to someone?

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Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with Reye's syndrome

We support carers, friends and family too

Are you a carer or relative of someone with Reye’s syndrome? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Reye’s syndrome, from anywhere in the UK.

We also run additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance.
Find out some of the ways we support carers below.

Other resources

Support groups

Support Groups at The Brain Charity

Are you interested in setting up a Reye’s syndrome support group, or do you already run one?

Email activities@thebraincharity.org.uk to let us know.

Alternatively, you can check out our list of related support groups here.

Other charities

National Reye's Syndrome Foundation UK

Website: www.reyessyndrome.rcpch.ac.uk

The National Reye’s Syndrome Foundation have a handy online contact form for any advice or support that is not featured on their website.

Contact