Normal Pressure Hydrocephalus (NPH)

Adult-onset hydrocephalus, Chronic communicating hydrocephalus, Idiopathic normal pressure hydrocephalus (iNPH), Secondary normal pressure hydrocephalus, Hakim's syndrome, Symptomatic normal pressure hydrocephalus

What is normal pressure hydrocephalus (NPH)

Normal Pressure Hydrocephalus (NPH) is a neurological condition characterised by an abnormal accumulation of cerebrospinal fluid (CSF) in the brain’s ventricles, leading to increased pressure on surrounding brain tissue. Despite the term “normal pressure,” the condition can cause significant neurological symptoms.

What is normal pressure hydrocephalus (NPH)?

NPH occurs when CSF accumulates in the ventricles, causing them to enlarge and put pressure on the brain. This pressure can impair brain function, leading to a range of symptoms. The condition is most common in older adults but can affect individuals at any age.

What are the symptoms of normal pressure hydrocephalus (NPH)?

The classic symptoms of NPH are often referred to as Hakim’s Triad and include:

  • Gait disturbance: Difficulty walking, often described as feeling like the feet are stuck to the floor.

  • Cognitive impairment: Memory problems, confusion, and difficulty concentrating.

  • Urinary incontinence: Loss of bladder control.

Other symptoms may include mood changes, depression, and apathy.

Are you affected by normal pressure hydrocephalus (NPH)?

If you’re affected by normal pressure hydrocephalus (NPH), The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with hydrocephalus, emotional support such as counselling, phone befriending and group therapy and social activities to people with hydrocephalus from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with normal pressure hydrocephalus (NPH)?

With normal pressure hydrocephalus (NPH) it’s important to monitor your loved ones symptoms or behaviour, to catch anything out of the ordinary. If there is a dramatic change, this could signal a problem.

Normal pressure hydrocephalus (NPH) can be an overwhelming condition, affecting both the patient and the carer. Therefore, it is essential to seek support from relevant groups.

Remember to take care of yourself as much as you care for your loved ones. If you require assistance or simply want a friendly chat, our compassionate counsellors and befrienders are here for you.

We support carers, friends and family too

Are you a carer for or relative of someone with hydrocephalus? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including hydrocephalus, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

The Brain Charity's library

The library at The Brain Charity has a range of resources on hydrocephalus and on a wide range of disability-related issues.

This includes Shine’s book for children about going to hospital “Benny gets bettter“.
Living With Normal Pressure Hydrocephalus by ASBAH, DVD, 2007
Roald Dahl’s Marvellous Medicine by Tom Solomon, Paperback, 2017

Support groups

Shine

Find support near you, including Shine networking events, services and online communities covering your area.

Other charities

Shine (formerly ASBAH, the Association for Spina Bifida and Hydrocephalus)

www.shinecharity.org.uk

Helpline: 01733 555988

CSF Leak Association