Long COVID

Post-COVID fatigue syndrome, Post-COVID, Post-COVID-19 neurological syndrome (PCNS), post-viral fatigue, post COVID syndrome, PASC, long haul COVID

What is long COVID?

The condition known as long COVID is used to describe the long-term side effects experienced in people who have contracted coronavirus.

How long it takes to recover from COVID-19 is different for everybody. Many people will feel better in a few days or weeks and most will make a full recovery within 12 weeks. But for some people, symptoms can last longer.

What causes long COVID?

Long COVID is caused by contracting coronavirus. Long-term symptoms Do not appear to be linked to how ill you are when you first get COVID-19. People with mild coronavirus symptoms at first can still have long-term problems.

What are the symptoms of long COVID?

Typical symptoms of long COVID include:

  • Fatigue (extreme debilitating tiredness)
  • Memory and concentration problems, often described as ‘brain fog’
  • Difficulty sleeping (insomnia)
  • Breathlessness and shortness of breath
  • Anxiety and depression
  • Palpitations
  • Chest pains or tightness
  • Joint or muscle pain
  • Muscle weakness
  • Joint stiffness
  • A persistent cough
  • Weight loss and loss of appetite
  • Dizziness
  • Pins and needles
  • Tinnitus and earache

Are you affected by long COVID?

If you’re affected by long COVID, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with long COVID, emotional support such as counselling, phone befriending and group therapy and social activities to people with long COVID from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with long COVID

We support carers, friends and family too

Are you a carer for or relative of someone with long COVID? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including long COVID, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

The Brain Charity's library

The Brain Charity’s free public library has a range of resources on long COVID

Visit our library to read Coronavirus and ME/CFS by the ME Association, or search the online catalogue here.

Support groups

Long COVID Facebook group

A private Facebook group has been set up by the charity Long Covid Support for people who have long COVID or are caring for someone with long COVID. Click here to access the long COVID Facebook group.

Covid Aid support community

The Covid Aid support community is a place for those affected by issues caused by coronavirus, including long COVID. Click here to join the Covid Aid support community.

Support groups at The Brain Charity

Are you interested in setting up a long COVID support group, or do you already run one? Email activities@thebraincharity.org.uk to let us know.

Alternatively, you can check out our list of related support groups here.

Other charities

Long Covid Support

Asthma + Lung UK (formerly the British Lung Foundation)

British Heart Foundation