|Name||Motor Neurone Disease (MND)|
|Related to/Also known as||Motor Neuron Disease
Amyotrophic Lateral Sclerosis (ALS)
|Symptoms of Motor Neurone Disease
Motor Neurone Disease is an uncommon disease, which causes a progressive degeneration of the motor system (the nerve cells that controls the muscles). It is a slowly progressive disease, whose common systems include muscle wasting/weakness, muscle cramps and difficulty with swallowing and with speech.
• The British Deaf Association has information in BSL about Motor Neurone Disease.
|Useful national contacts||Motor Neurone Disease Assocation (MNDA)
Helpline: 08457 626262 (local rate)
Find your local branch
• The Liverpool MND Support Group meets at The Brain Charity
|Children & young people||
Children and young people (MNDA)
Motor neurone disease (NHS Choices)
Motor neurone disease (Brain & Spine Foundation)
Motor neurone disease (Brain Research UK)
|News and events||The 100,000 Genomes Project is looking for people with Motor Neurone Disease for research into their DNA and genes
Trajectories of Outcome in Neurological Conditions (TONiC) study seeks volunteers
The library at The Brain Charity has a range of resources on Motor Neurone Disease and on a wide range of disability-related issues.
This includes a copy of the MNDA's booklet 'When Someone Close has MND: A workbook for children aged 4 to 10'.