Postural tachycardia syndrome (POTS)

DaCosta's syndrome, effort syndrome, orthostatic intolerance, POTS

What is POTS?

POTS (postural tachycardia syndrome) is a relatively common condition that affects how the body controls heart rate and blood flow when sitting or standing. When a person’s heart beats too quickly, it can lead to symptoms such as dizziness and fainting. This change is caused by the nervous system and is not usually linked to the heart itself.

The condition can vary from mild to more severe, however symptoms can often be managed well.

POTS tends to affect teenagers and younger adults, although it can happen at any age.

What causes POTS?

The exact cause of POTS isn’t always clear. It is thought to be linked to a problem with our autonomic nervous system, which controls automatic body functions, such as digestion, body temperature and sweating.

The symptoms of POTS often begin after a viral illness, including long COVID, and can be linked to some autoimmune conditions too. Some people find that hormonal changes such as menstruation can also make symptoms more noticeable.

What are the symptoms of POTS?

The symptoms of POTS can affect people at different times and are often more noticeable after being unwell.

Symptoms include:

• Dizziness or feeling lightheaded
• Shaking and sweating
• Shortness of breath
• Headache and feeling sick
• Fainting

These symptoms often improve when lying down. Other symptoms include:

• ‘Brain fog’, or having trouble thinking and making decisions
• Extreme tiredness, or feeling weak
• Vision problems, such as blurred vision

POTS can be a long term condition, but many people find their symptoms improve with changes to their diet and avoiding triggers, such as dehydration, stress and alcohol.

It can often go undiagnosed, so if you notice changes in heart rate, or dizziness when standing, it’s a good idea to talk to your doctor.

Are you affected by POTS?

If you’re affected by POTS The Brain Charity can support you.

We are the only charity in the UK to be here for every one of more than 600 different neurological conditions in existence. Individually, many are rare, but combined they affect 1 in 6 people.

We provide practical help on all aspects of living with POTS, emotional support such as counselling, phone befriending and group therapy and social activities to people with POTS from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with POTS

We support carers, friends and family too

Are you a carer or relative of someone with POTS? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including POTS, from anywhere in the UK.

We also run additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance.
Find out some of the ways we support carers below.

Other resources

Support groups

POTS UK

POTS UK offers online support groups for anyone affected by the condition.

Find out more here

POTS Chat UK

A Facebook group to share experiences with others living with POTS.

Check it out here

Support groups at The Brain Charity

Are you interested in setting up a POTS support group, or do you already run one?

Email activities@thebraincharity.org.uk to let us know.

Alternatively, you can check out our list of related support groups here.

Other charities

POTS UK