|Related to/Also known as||Von Recklinghausen's Disease|
|Symptoms of Neurofibromatosis
||A genetic disorder, mainly of the nervous tissue, causing benign tumours on nerve tissue anywhere in the body.|
Neurofibromatosis Type 1 (Nf1) is the most common type, causing tumours (non-malignant and bumps) to form on nerve endings anywhere in the body. Other effects can include learning difficulties, social problems and epilepsy.
Neurofibromatosis Type 2 (Nf2) is a much rarer disorder of the nerve tissue, resulting in acoustic neuromas or vestibular Schwannomas on the nerve that takes messages from the ear to the brain. This can then result in progressive deafness and communication problems.
|Useful national contacts||Nerve Tumours UK (formerly the Neurofibromatosis Association)
Tel: 020 8439 1234
|Children & young people||
Childhood Tumour Trust
Neurofibromatosis support downloads (Nerve Tumours UK)
The Brain Changer Arts Project (The Brain Charity)
Easy-Read guide to Coronavirus from Mencap
Neurofibromatosis& COVID-19 (Coronavrus) (Nerve Tumors UK)
Neurofibromatosis type 1 (NHS Choices)
Neurofibromatosis type 2 (NHS Choices)
Neurofibromatosis Information Page (U.S. National Institute of Neurological Disorders and Stroke)
Living with a condition (The Brain Charity)
|News and Events||Survey: Treatment of Childhood Neurological Conditions (British Paediatric Neurology Association, September 2020)
The library at The Brain Charity has a range of resources on Neurofibromatosis and on a wide range of disability-related issues.