Coronavirus: How to get Help

Sign up here for coronavirus support as an extremely vulnerable person from the UK Government.

The Brain Charity can also help anyone with a neurological condition, their family and carers with shopping, collecting prescriptions, etc.

If you need help, please get in touch: Email The Brain Charity or call us free on 0800 008 6417 (Monday-Friday: 9am-4.30pm)

Advice for people at high risk (GOV.UK)•
Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19 (Gov.UK, 31st May)
COVID-19 and Rare Neuroimmune Disorders (Siegel Rare Neuroimmune Association)

Get coronavirus support as an extremely vulnerable person (GOV.UK)

Living with a rare condition"A rare disease is defined ... as one that affects fewer than 5 in 10,000 of the general population. There are between 6,000 and 8,000 known rare diseases and around five new rare diseases are described in the medical literature each week. In the UK, a single rare disease may affect up to about 30,000 people. The vast majority of rare diseases will affect far fewer than this - some will affect only a handful - or even a single person in the whole of the UK."  Source: Rare Disease UK

If you can't find information in our A-Z of neurological conditions, try the links below, or you can contact us and we will have a look for some information for you.

At The Brain Charity's library and information centre in Liverpool, we have information on many rare conditions. You can also read our copy of Contact's booklet "Living with a rare condition".


  • Rare Disease Day is held on the last day of February to raise awareness for rare diseases.
  • Wear Jeans for Genes Day is held every September to raise funds for children and families affected by genetic disorders