Episodic ataxia

What is episodic ataxia?

Episodic ataxia is a condition in which a person experiences attacks that affect their coordination, balance and speech.

What causes episodic ataxia?

Episodic ataxia is hereditary and is caused by a faulty gene that results in damage to a part of the brain known as the cerebellum or the spinal cord.

It is autosomal dominant, meaning the condition can develop if a person inherits a single faulty gene from one of their parents.

What are the symptoms of episodic ataxia?

The main symptom of episodic ataxia is attacks that affect a person’s coordination, balance and speech.

These attacks usually begin in the teenage years and can last from minutes to hours.

They may involve:

  • Issues with balance and coordination.
  • Dysarthria which involves slurred, slow and unclear speech.
  • Muscle spasms.
  • Involuntary eye movements.
  • Vertigo.
  • Migraines.
  • Tinnitus.

Are you affected by episodic ataxia?

If you’re affected by episodic ataxia, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with episodic ataxia, emotional support such as counselling, phone befriending and group therapy and social activities to people with brain injuries from all over the UK from our centre in Liverpool.

Looking to talk to someone?

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Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone affected by episodic ataxia

We support carers, friends and family too

Are you a carer for or relative of someone with episodic ataxia? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including episodic ataxia, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

The Brain Charity's library

The Brain Charity’s library has a range of resources on ataxia and on many other disability-related issues.

Support groups

Ataxia North West Support Group

The Ataxia North West Support Group meets at The Brain Charity on the first Saturday of each month. Click here for more information.

Website: Join the group on Facebook.

Email: Adam or Michelle.

Ataxia UK Health Unlocked

16-30’s Project

A Facebook group that provides young adults who are affected by the condition the opportunity to support and give advice to each other and to create friendships.

Website: www.ataxia.org.uk/support-services/16-30s

Phone: 0800 995 6037

Email: communications@ataxia.org.uk (message to request to join)

Parents of children with ataxia group

Other charities

Ataxia UK