Tourette syndrome

Tourette's syndrome, Tourrette's

What is Tourette syndrome?

Tourette syndrome is a neurological disorder characterised by multiple tics, which are sudden, repetitive involuntary movements and sounds.

There is no cure for Tourette syndrome, however the tics can improve over years and sometimes go away completely. There are treatments to help manage the tics.

Tics can be affected if you are stressed, tired or have anxiety. It can be exhausting trying to control tics in social situations, like a classroom or in public, so there may be a build up of tics afterwards.

What causes Tourette syndrome?

The cause of Tourette syndrome is unknown. It is thought to involve the interaction of multiple gene variations and environmental factors.

If your child starts experiencing tics, you should contact your GP.

What are the symptoms of Tourette syndrome?

Tourette’s can affect people differently, some can be more severe than others. Symptoms can include:

  • Blinking
  • Sudden movements of arms and legs
  • Shouting with very little control

Children may also experience other behavioural problems. Tourette syndrome can often be linked with Obsessive Compulsive Disorder (OCD) and Attention Deficit Hyperactivity Disorder (ADHD).

Are you affected by Tourette syndrome?

If you’re affected by Tourette syndrome, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with Tourette syndrome, emotional support such as counselling, phone befriending and group therapy and social activities to people with Tourette syndrome from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0800 008 6417

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Caring for someone affected by Tourette syndrome

Your loved one is unable to control their muscles while having tics. Do not be offended by their language as it is involuntary. Especially in children, tic attacks can occur when coming home from school, as they are exhausted from masking their tics.

We support carers, friends and family too

Are you a carer for or relative of someone with Tourette syndrome? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Tourette syndrome, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

The Brain Charity's library

The Brain Charity's library has a range of resources on Tourette syndrome and on many other disability-related issues.

Support groups

Support groups at The Brain Charity

Are you interested in setting up an Tourette syndrome support group, or do you already run one? Email info@thebraincharity.org.uk to let us know.

Alternatively, you can check out our list of related support groups here.

Other charities

Tourettes Action

Website: www.tourettes-action.org.uk
Helpline: 0330 777 8427