Real life stories
Real life stories
Shirley’s syringomyelia story: “Just 0.008% of people have my rare condition – The Brain Charity stopped me from becoming a recluse”
Shirley was diagnosed with syringomyelia – a fluid-filled cyst known as a syrinx that grows
Category: Counselling
Published: 28 September 2022
Marie’s brain tumour story: “I said goodbye to my newborn daughter and had to learn to walk again”
The new mum found out she had a golf ball-sized meningioma after giving birth.
Category: Counselling
Published: 22 March 2021
Karl’s Chiari malformation story: “Some dads get to put their children on their shoulders, I’ve never been able to”
It took 8 years to get a Chiari malformation Type 1 diagnosis despite facing agony.
Category: Counselling
Published: 15 March 2021
Carmen’s Stiff Person Syndrome story: “I used to travel, but my one in a million condition left me unable to leave my home”
SPS causes muscle rigidity & spasms triggered by sudden noises, like a beeping pedestrian crossing.
Category: Counselling
Published: 15 March 2021
Sonya’s brain haemorrhage story: “I nearly died, people don’t take my invisible disability seriously”
Her 4-year-old daughter helped save her life when she collapsed.
Category: Counselling
Published: 15 March 2021
