Real life stories

Pauline sitting on a hill looking at the camera

Pauline’s executive dysfunction story: “COVID left me isolated: The Brain Charity welcomed me with open arms”

Pauline has Alice in Wonderland Syndrome, an extremely rare illness which can cause parts of

Category: COVID-19

Published: 28 April 2022

Lindsey's Multiple Sclerosis story header

Lindsey’s MS story: “Diagnosis was like falling into a hole – The Brain Charity’s help was life-changing”

Lindsey was diagnosed with MS in October 2020.

Category: COVID-19

Published: 21 September 2021

Graham with his daughter Joanne, aged 19, who visited him in hospital before her end of school prom

Graham’s brain haemorrhage story: “I went from working in intensive care to being there myself”

Graham, 58, started his career as a pharmacist at The Walton Centre.

Category: COVID-19

Published: 31 August 2021

Hazel and Robert

Hazel’s dementia story: “Dementia took away my husband’s ability to speak; Music Makes Us! helped us reconnect”

Robert, 92, was diagnosed with vascular dementia with Lewy bodies in December 2018.

Category: COVID-19

Published: 12 July 2021

Stephen says The Brain Charity was a life saver

Stephen’s COVID-19 story: “It’s no exaggeration to say The Brain Charity was a life saver”

During the COVID-19 pandemic, The Brain Charity's weekly call was his only social interaction.

Category: COVID-19

Published: 30 June 2021


Ian’s COVID-19 story: “Without The Brain Charity’s lifeline, I wouldn’t have been able to put food on the table”

He didn't get a shielding letter despite having chronic peripheral neuropathy, so couldn't order food.

Category: COVID-19

Published: 15 March 2021


Gerard’s stroke story: “I was left with nothing, but The Brain Charity saved me from going under”

He was left in desperation, fearing his home would be repossessed.

Category: COVID-19

Published: 30 March 2021


Jane’s Leigh Syndrome story: “I felt abandoned – but The Brain Charity helped me make friends”

Adult Onset Leigh Syndrome is so rare it affects just one in 100,000 people.

Category: COVID-19

Published: 15 March 2021


Carmen’s stiff-person syndrome story: “I used to travel, but my one in a million condition left me unable to leave my home”

SPS causes muscle rigidity & spasms triggered by sudden noises, like a beeping pedestrian crossing.

Category: COVID-19

Published: 15 March 2021

Man using mobile

Phillip’s COVID-19 story: “There is nowhere near enough humility in the world, but The Brain Charity showed me plenty”

Lockdown meant the barber had less than £5 a day to survive on.

Category: COVID-19

Published: 15 March 2021