Lewy body dementia, dementia with Lewy bodies, Lewy body disease

LBD

What is Lewy body dementia?

Lewy body dementia is a progressive brain condition affecting thinking, movement and mood. It shares many symptoms with Alzheimer’s and in some cases, people diagnosed with Parkinson’s may go onto develop Lewy body dementia.

Due to the similarities between conditions, Lewy body dementia can be difficult to diagnose. It typically affects people between the ages of 60 and 70 and is the second most common form of dementia.

Currently there is no cure, but with support from charities like ours we can help you improve quality of life for you and your loved ones.

What causes Lewy body dementia?

Lewy body dementia is caused by proteins called Lewy bodies building up and clumping together in various parts of the brain.

The clumps tend to affect the parts of the brain that control vision, thinking and movement.

What are the symptoms of Lewy body dementia?

The symptoms of Lewy body dementia can be confused with those of other dementias. These symptoms include:

  • Memory problems – forgetting names, repeating things and getting lost in conversation
  • Confusion – struggling to understand a familiar routine, or difficulty making and carrying out plans
  • Problems with thinking – difficulty concentrating or problem solving
  • Speech difficulties – forgetting words and speaking slowly
  • Mood changes – becoming anxious or depressed, or changes in behaviour.

Dementia is often thought to follow seven stages (commonly called the 7 stages of dementia), starting with no symptoms at first, to severe memory loss and daily challenges.

Unlike other forms, Lewy body dementia has two important differences that can appear in the early stages:

  • A person with Lewy body dementia may experience visual hallucinations – seeing things when they’re not really there.
  • Symptoms often come and go – a person can seem fine one minute and confused and disorientated the next.

Are you affected by Lewy body dementia?

If you’re affected by Lewy body dementia, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with Lewy body dementia, emotional support such as counselling, phone befriending and group therapy and social activities to people with Lewy body dementia and their family, friends and carers from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with Lewy body dementia

We support carers, friends and family too

Are you a carer for or relative of someone with Lewy body dementia? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Lewy body dementia, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

Support groups

Lewy Buddies

Join the Lewy Buddies directory to sign up for local peer support.

Lewy Buddies publishes a monthly calendar of support events where you will find links to online and in-person sessions.

You can also find support from those in similar circumstances by joining the Lewy Buddies Facebook page.

Alzheimer's Society

Alzheimer’s Society run a dementia support forum providing support from others affected with similar dementias.

The forum covers topics such as peer support, as well as relevant news stories and recommendations for products and services the you may find helpful.

Support groups at The Brain Charity

The Brain Charity’s Music Makes Us program is a 12-week online program to help combat the symptoms of dementia through music and singing.

By combining speech and language therapy with the joys of music and dance, we aim to lift spirits and spark happy memories.

To access our interactive YouTube course, please register here.

Other charities

Dementia UK

The Lewy Body Society

Website: www.lewybody.org

Phone: 01942 914 000

Email: info@lewybody.org

Social media: Facebook

Alzheimer's Society

Website: www.alzheimers.org.uk

Phone: 0333 150 3456

Social media: Facebook