Polymyositis

Myositis, Dermatomyositis, Inclusion Body myositis, Myositis Antisynthetase Syndrome, Myositis with complications

What is polymyositis?

Polymyositis is an inflammation of the muscles because of cell damage. It is a rare disease that affects the muscles, joints and tissues. Females are more likely to get it more than males and can take effect at any age. The muscle weakness is progressive.

What is the cause of polymyositis?

It is not known what causes polymyositis but it might be genetic or environmental. It could also be passed on by a viral infection or because of a defective immune system.

What are the symptoms of polymyositis?

Symptoms of polymyositis can arise at any time of life and these include:

  • Muscle pain/tenderness
  • Weakness in arms
  • Depression
  • Fever
  • Weightloss

Are you affected by polymyositis?

If you’re affected by polymyositis, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the over 600 neurological conditions. Individually, they are rare, but they affect 1 in 6 people, combined.

We provide practical help on all aspects of living with polymyositis, from emotional support such as counseling, phone befriending and group therapy, to social activities to help people with brain injuries from all over the UK from our centre in Liverpool.

Caring for someone with polymyositis

We support carers, friends, and family too.

Are you a carer for, or a relative of someone who has polymyositis? It’s also important for you to look after your mental and physical wellbeing too.

The Brain Charity provides free support for carers, friends and family with any form of neurological condition, even polymyositis, from anywhere in the UK.

We also run an additional carer advocacy service for all carers in Liverpool, regardless of what type of condition the person they care for has.

You don’t need to be a formal or registered carer.

We can help you, even if you don’t view yourself as a formal carer, or claim Carer’s Allowance. 

Below are the different ways we support carers.

 

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone affected by Alexithymia?

We support carers, friends and family too. 

Are you a carer for or relative of someone with Alexithymia? It’s just as important for you to look after your own physical and mental wellbeing too. 

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Alexithymia, from anywhere in the UK. 

We also run additional carer advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.  

You don’t need to be a formal or registered carer 

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.  

Other resources

Other resources

The Brain Charity’s Library

Library of Resources

The Brain Charity’s library has a range of resources on tinnitus, as well as many other disability related issues.

Visit the library to read:

Or search our library catalogue online here

Support groups

UK Juvenile Dermatomyositis Research Group

Charities

Myositis UK

Website: Myositis UK: Home

Tel: 023 8044 9708

Email: msg@myositis.org.uk

Rare Autoinflammatory Conditions Community UK

Muscular Dystrophy UK

Website: Muscular Dystrophy UK

Tel: 0800 652 6352

Email: info@musculardystrophyuk.org