Posterior Cortical Atrophy (PCA)

Dementia, Alzheimers Disease, Alzheimers, vascular dementia,

What is PCA?

Posterior Cortical Atrophy (PCA) is a rare, degenerative neurological condition that affects the back part of the brain—the region responsible for processing visual information.

PCA is often considered an atypical form of Alzheimer’s disease, though it may also be linked to other forms of dementia. It tends to affect people at a younger age than typical Alzheimer’s, often in their 50s or early 60s. In very rare cases, Posterior Cortical Atrophy has taken place in people far below the average age, with some as young as in their twenties.

What are the symptoms of Posterior Cortical Atrophy?

PCA primarily impacts visual processing rather than memory in its early stages. Symptoms may include:

  • Difficulty judging distances or spatial relationships
  • Problems reading, writing, or recognising objects
  • Trouble navigating spaces or using everyday tools
  • Visual hallucinations or illusions
  • Increased anxiety or confusion in unfamiliar environments

As the condition progresses, individuals may also experience more typical dementia symptoms such as memory loss or language difficulties.

What causes Posterior Cortical Atrophy?

The exact cause of PCA isn’t fully understood, but it is usually related to the build-up of abnormal proteins in the brain (such as tau or amyloid). These changes damage the brain’s visual processing areas, leading to the early symptoms of PCA.

Are you affected by Posterior Cortical Atrophy (PCA)?

Posterior Cortical Atrophy affects a small but growing number of people in the UK, often under the age of 65. If you start having persistent problems with reading, judging distances, or recognising everyday objects — despite having healthy eyes — speak to your GP. These could be early signs of PCA.

If you’re affected, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with dementia, emotional support such as counselling, phone befriending and group therapy and social activities to people with dementia from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone affected by Posterior Cortical Atrophy (PCA)

Caring for someone with PCA can be hard and tiring, as sometimes they may not seem like the person you knew before.

Memory aids around the home are a great way for people with varying forms dementia and Alzheimer’s like Posterior Cortical Atrophy to keep some independence.

We support carers, friends and family too

Are you a carer for or relative of someone with dementia? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including dementia, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

The Brain Charity's library

The library at The Brain Charity has a range of resources on dementia and many other disability-related issues

Support groups

Music Makes Us! at The Brain Charity

Alzheimer's Society

Alzheimer Scotland (covers support groups in Scotland)

To find out what is available in your local area, contact your local Dementia Advisor.

Support groups at The Brain Charity

Are you interested in setting up a dementia support group, or do you already run one? Email activities@thebraincharity.org.uk to let us know.

Alternatively, you can check out our list of related support groups here.

Other charities

Alzheimer's Society (covers England, Wales, Northern Ireland)

Website: www.alzheimers.org.uk
Helpline: 0845 300 0336

Alzheimer Scotland (covers Scotland)

Website: www.alzscot.org
Helpline: 0808 808 3000

Dementia UK and Young Dementia UK

Website: www.dementiauk.org
Admiral Nurse Dementia Helpline: 0800 888 6678

 

Rare Dementia Support

Young Dementia Network