Lennox-Gastaut syndrome

LGS, childhood epileptic encephalopathy, myoclonic-astatic epilepsy

What is Lennox-Gastaut syndrome?

Lennox-Gastaut syndrome (LGS) is a severe form of epilepsy which begins in childhood, usually before the age of 4.

What causes Lennox-Gastaut syndrome?

The exact cause of LGS is often unknown, doctors may refer to it as idiopathic.

However, in some children LGS can be part of a genetic condition such as tuberous sclerosis or Down’s syndrome. Injuries from birth or infections such as encephalitis and meningitis may also play a role in the development of LGS.

What are the symptoms of Lennox-Gastaut syndrome?

The symptoms of LGS can vary widely, as there are different types of seizure that a child may experience. These include:

  • Tonic seizures (the body suddenly stiffens, pupils dilate and breathing patterns may change)
  • Atypical absences (a period of ‘zoning out’, or staring into space)
  • Atonic seizures (a brief loss of muscle strength which can lead to falls – often referred to as ‘drop attacks’)
  • Myoclonic seizures (sudden muscle jerks or muscle twitches)
  • Generalised tonic-clonic seizures (body stiffness followed by shaking).

Each child’s seizure pattern will differ and can change over time.

As well as seizures children may face challenges with learning or controlling their behaviour. They may appear more irritable than usual or have difficulties paying attention.

LGS can affect a child in lots of different ways, so it’s important to seek out support – not just for your child but for you as a carer too.

 

Are you affected by Lennox-Gastaut syndrome (LGS)?

If you’re affected by LGS The Brain Charity can support you.

We are the only charity in the UK to be here for every one of more than 600 different neurological conditions in existence. Individually, many are rare, but combined they affect 1 in 6 people.

We provide practical help on all aspects of living with LGS, emotional support such as counselling, phone befriending and group therapy and social activities to people with LGS from all over the UK from our centre in Liverpool.

Looking to talk to someone?

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Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with Lennox-Gastaut syndrome(LGS)

We support carers, friends and family too

Are you a carer or relative of someone with LGS? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including LGS, from anywhere in the UK.

We also run additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance.
Find out some of the ways we support carers below.

Other resources

Support groups

Young Epilepsy

Lots of information on LGS can be found here.

Young Epilepsy have divided support into age brackets, supporting children from birth until they need adult care. Explore the help they offer.

One-to-one support for children 8+ can be accessed here, as well as social events and a virtual youth club,

LGS UK Facebook group

A group for families to support each other. Click here to join.

Support groups at The Brain Charity

Are you interested in setting up a LGS support group, or do you already run one?

Email activities@thebraincharity.org.uk

Alternatively, you can check out our list of related support groups here.

Other charities

Epilepsy Action

Young Epilepsy