Name  Dystonia
Related to/Also known as  
Symptoms of Dystonia
Dystonia is a disorder which causes muscles in the body to contract and spasm involuntarily. Spasms may affect one part of the body or many parts simultaneously and can be very painful.

The Dystonias can be defined in terms of which body parts are involved.

  • Focal - affects one part
  • Segmental - 2 or more adjacent body parts
  • Multifocal - 2 or more non-adjacent parts
  • Generalised

Primary focal dystonia are the most common including:

  • Cervical dystonia (or spasmodic torticollis) affects the neck muscles.
  • Blepharospasm affects the muscles of the eyelids.
  • Hand dystonia/writer's cramp affects the hand and finger muscles
  • Laryngeal dystonia (or spasmodic dysphonia) affects the vocal chords.
  • Oromandibular dystonia affects the muscles in the jaw, mouth and tongue.
Useful national contacts

Dystonia UK
89 Albert Embankment
London SE1 7TP

This email address is being protected from spambots. You need JavaScript enabled to view it.
020 7793 3651

Find your local support group https://www.dystonia.org.uk/your-local-support-group

The Liverpool group meets at The Brain Charity https://www.dystonia.org.uk/liverpool-merseyside

Children & young people  
Online resources

Covid-19 Vaccinations (Dystonia UK

Link opens in new window www.dystonia.org.uk/news/covid-19-vaccinations

Coronavirus and Dystonia (Dystonia UK)
Link opens in new window https://www.dystonia.org.uk/News/coronavirus-and-dystonia

Dystonia (NHS website)
Link opens in new window www.nhs.uk/conditions/dystonia



 Living with a condition (The Brain Charity)

News and events

Sign Joanne's petition: Dystonia needs to be recognised by all medical professions & occupational therapists
Link opens in new window https://tinyurl.com/y9y6d6pv

Our resources


Medikidz Explain Dystonia ManagementThe library at The Brain Charity has a range of resources on Dystonia and on a wide range of disability-related issues.

This includes the book for children and young people Medikidz Explain Dystonia Management.