Name Prader-Willi Syndrome
Related to/Also known as HHHO Syndrome
Symptoms of Prader-Willi syndrome
Prader-Willi syndrome is a genetic disorder, which is present from birth. It is characterised by a number of behavioural and psychological features, including low muscle tone, excessive appetite (leading to obesity if not controlled), and immature physical development . Most have borderline or moderate learning difficulties.
Useful national contacts PWSA-UK (Prader-Willi Syndrome Association)
Link opens in new window www.pwsa.co.uk
Tel: 01332 365676
Children & young people Information For Families - Family Life (PWSA-UK)
Link opens in new window www.pwsa.co.uk/information-for-families/family-life
Online resources Prader-Willi syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/c7wl5z6
Our resources The library at The Brain Charity has a range of resources on Prader-Willi syndrome and on a wide range of disability-related issues.