The Brain Charity

Creutzfeldt-Jakob Disease (C.J.D.)

C

Name	Creutzfeldt-Jakob Disease (CJD)
Related to/Also known as
Symptoms of CJD	CJD is a rare, untreatable, fatal illness affecting the brain. It is one type of the group of transmissible spongiform encephalopathies (TSEs). CJD is divided into four different forms, which all have different causes and symptoms, but they all have the same basic disease process of the accumulation of abnormal prion protein in the brain tissue:
Types	Sporadic CJD, of unknown cause and occurs mainly in the middle-aged and elderly. Genetic CJD, very rare and due to an inherited genetic defect. Iatrogenic CJD, results from accidental transmission by medical or surgical equipment. Variant CJD (vCJD) - a new form of the disease, which has emerged in recent years, linked to a prion disease which affects cattle, bovine spongiform encephalopathy, or BSE. Variant CJD appears to affect younger people.
Useful national contacts	CJD Support Network www.cjdsupport.net Tel: 01630 673973 National CJD Surveillance Unit www.cjd.ed.ac.uk Tel: 0131 537 2128 National Prion Clinic Tel. 020 3448 4037/4038 www.nationalprionclinic.org
Children & young people	Creutzfeldt-Jakob disease facts for kids (Kpedia) https://kids.kiddle.co/Creutzfeldt-Jakob_disease
News and events
Online resources	Creutzfeldt-Jakob Disease (NHS Choices website) https://tinyurl.com/ybwmkkvj Creutzfeldt-Jakob Disease Information Page (U.S. National Institute of Neurological Disorders and Stroke website) https://tinyurl.com/y99mbozu Notification and support for people exposed to the risk of Creutzfeldt-Jakob disease (CJD) (or other prion diseases) through medical treatment (Cochrane website) https://tinyurl.com/yc8r4cuu
Our resources	The library at The Brain Charity has a range of resources on Creutzfeldt-Jakob Disease (CJD) and on a wide range of disability-related issues.

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